Ep 201 December 2021 Roundup

Let’s start the blog with the show notes for this Episode –

It’s the beginning of the month, and that means I get to talk with my friend Ellen Bayens about the topics, studies and interesting articles regarding celiac disease and the gluten free diet featured on her website.  For more information visit theceliacscene.com and sign up for Ellen’s monthly newsletter.

NEWS FROM THE CELIAC SCENE

1900 Gluten-Free Families Care & Share in Private Group – Ask to Join
Migraines More Common Amongst Celiacs
New Research Identifies Who Should be Offered Testing for Celiac Disease
Gluten-Free Hazelnut Torte Taking Costco Shoppers by Storm!

SELENA’S CORNER

• Join Selena for Instagram Questions & Answer Sessions every Tuesday
• Join Selena’s Symptom Relief Facebook Group

GLUTEN-FREE RECIPES

• Everyday Gluten Free Gourmet Virtual Class Calendar
• Purchase a Gift Certificate for a Gluten-Free Cooking Class!

GLUTEN-FREE PRODUCTS & SERVICES • Order Your Basket of Beautiful Wise Bites’ Baking
• Cocoabeans Gourmet Gluten-Free Mixes – Now Available Online!

Hazelnut Torte from Trump Foods sold at Costco in Victoria

Sue’s Websites and Social Media

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

My Thoughts

Those of us living in Ontario have something to celebrate.  The CCA has worked hard for many years to educate the powers that be in the Ontario government regarding the coverage of celiac screening tests.  Ontario is the only province in Canada that does not cover the costs of the accepted blood testing for celiac disease.  There have always been exceptions to this rule, and they mostly included testing done from a hospital emergency department and some other hospital services. 

The result of not covering the costs of celiac testing in Ontario was that doctors legitimately saw the celiac bloodwork as something out of the ordinary, and even if they suspected celiac in an initial consultation with a patient, more likely than not, the physician would send the patient for a series of other tests covered by OHIP, before going outside of that bubble with uncovered bloodwork.  To add to this, was the discussion the doctor would have with the patient about the cost of the test.  Maybe to some it wouldn’t be a problem, maybe some had private insurance that covered it, but there would always be some patients who would turn down the test, because they simply couldn’t afford it.  Clearly this put the physician in a difficult situation, and creates a difficult path to diagnosis.

Currently, there is a six-month pilot program underway in Ontario to cover the cost of celiac testing.  Our job, as those in the know about celiac testing, is to encourage anyone in Ontario who may require celiac bloodwork, or someone in a family who opts for periodic testing because of a higher risk.

To this point, with me and my oldest daughter diagnosed, my younger daughter is tested periodically.  She was due for a re-test.  A recent doctor visit highlighted the difficulty the government has in getting their message out.  My daughter went armed with both the CCA website description of the new Ontario testing policy, along with the bulletin link provided on the CCA webpage.  The doctor did take the time to read the information and was able to write the test requisition – phew!  The blood test appointment has been made, so we’ll wait and see – oh yes, and she will be eating lots of gluten prior to the test, as I always inform others to do.