A Canadian Celiac Blog

It’s the beginning of a new month and a new year, which makes it a great time to chat with Ellen Bayens of theceliacscene.com. On this episode Ellen and I talk about some big picture issues including a study regarding public policies and quality of life for celiacs around the world.

Public Policies vs Quality of Life for Celiacs

We look at one county in the UK that is changing the way celiacs are able to buy and have assistance with the purchase of gluten free food – is this just an experiment in one area to see what might happen on a national scale?

Bah Humbug! UK Scrapping Revered Gluten-Free Food Prescription Subsidy for Celiacs!

The Low FODMAP diet is again a topic of discussion as many celiacs are using it to over time, identify what might be causing them digestive issues once they are established on the gluten free diet.

Low-FODMAP Diet | Hope for Celiacs with Ongoing Symptoms?

Ellen introduces us to a new study using MRI technology to measure the impact of the gluten free diet on celiacs and compares it to those eating a standard diet. The study looks at newly diagnosed celiacs and then again at the same group after one year on the diet. Some interesting conclusions that could only be seen with MRI technology.

MRI Technology Measures Impact of Gluten-Free Diet on Celiacs

We also spoke about my recent podcast with Caleigh McAulay RD from Celiac Canada regarding people who are not celiac, but are eating a gluten free diet – how does this affect us?

Gluten-Free as a Trend | A Canadian Celiac Podcast

Recently Selena DeVries RD who is a good friend of both the podcast and The Celiac Scene, re-branded. You can find her now on –

Instagram –    @celiac_made_simple

Website –   www.selenard.com

Facebook –  Celiac Made Simple

We also spoke about making sure you were signed up on the email list with Celiac Canada to receive current information from them. You can do so by going to the website celiac.ca  and scroll down on the home page to sign up.

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Recently, I spoke with Melissa Secord and Caleigh McAulay, RD after they attended the International Symposium on Celiac Disease held in Sheffield UK this fall. During that conversation Caleigh mentioned a presentation that she found very interesting by Anne Lee, RD. The presentation was titled “Is the Gluten-Free Diet Always Portrayed Negatively”.

I was interested to speak to Caleigh about this with a consideration as to who is eating gluten free besides those of us with celiac disease. Caleigh breaks it down for us and looks at the pros and cons of an expanded population eating gluten free. As well we talk about other people who feel the gluten free diet helps their medical conditions.

The research magazine from Celiac Canada regarding insights from the International Symposium is due to be mailed out before year end. I’m excited to read more about some of the scientific breakthroughs and testing of treatments for celiac disease. Very hopeful information at this time of year.

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

It’s hard to believe it’s December, but it’s another great opportunity to speak with my good friend Ellen Bayens of theceliacscene.com. Ellen and I chat about things that she has published on her blog over the past month.

We start by talking about the podcast conversation I had with Celiac Canada’s Melissa Secord and Caleigh McAulay RD attending the International Symposium on Celiac Disease held in Sheffield UK earlier this fall. We talked about new paths to diagnosis, the 20 ppm standard for gluten free as well as the role of the different support groups internationally. Celiac Canada Report on International Celiac Symposium | A Canadian Celiac Podcast

Ellen tells us about a Spanish study to identifies that many healthcare professionals have a lack of knowledge about celiac disease and the gluten free diet. SPAIN: 96% of Public Health Workers Want More Training in the Gluten-Free Diet

We also start a discussion about the reliability of information sourced from ChatGPT particularly to answer questions about celiac disease and the gluten free diet. Should We Trust ChatGPT for Gluten-Free Diet Advice?

Both Ellen and I have good news stories about prices for gluten free meals and foods (this was a surprise!). Six Mile Pub Drops Surcharge for ‘Gluten-Free’ Menu Items

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

It’s been a busy year for Celiac Canada and one highlight has to have been Melissa Secord and Caleigh McAulay RD attending the International Symposium on Celiac Disease held in Sheffield UK earlier this fall.

Both Melissa and Caleigh returned with so much information regarding ongoing and upcoming research along with best practices from other countries. Melissa shares with us some new theories for better diagnosis as well as questioning some ideas we have held as fact. Caleigh presented a poster on behalf of Celiac Canada regarding our recent State of Celiac Survey and learned so much from the many sessions and from other dietitians in attendance.

Celiac Canada was well represented by Melissa and Caleigh, and I was thrilled to have an enlightening conversation with them about their experiences at the Symposium.

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

It’s the beginning of November and that means I get to catch up with my friend Ellen Bayens of theceliacscene.com. Ellen and I speak about the petition being circulated by Celiac Canada regarding a tax benefit to help with the cost of the gluten free diet. This important petition must be signed by November 10^th, so if you haven’t signed and it’s before November 10, please follow the link, and send it on to friends and family – there’s strength in numbers!

Petition to Change the Way Celiacs Receive a GF Food Tax Credit

Recently there was a very broad recall of frozen waffles and pancakes which included some gluten free products and many different brands. Please check the recall notice that Ellen has posted and open your freezer to make sure you don’t have any of the contaminated packages – this is very important.

National Recall: Various Brands | Gluten-Free Waffles | Listeria Monocytogenes

Cindi Little, the Everyday Gluten Free Gourmet has posted a very interesting article about the wheat starch flour blends that are currently being imported from Europe. Ellen and I have a lively discussion. I’ve used the wheat starch, and you may have already eaten it in some commercial gluten free foods.

What are We Going to do About Wheat Starch?

Have you ever wondered about the “Gluten Friendly” claims on a restaurant menu. Selena DeVries, a Registered Dietitian gives us her take on the term, as well, Ellen and I share our opinions.

Why I Love ‘Gluten-Friendly’ Menus

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

On this podcast, I had the pleasure of speaking with Nicole Byrom a Registered Dietitian who works with Celiac Canada. Nicole is changing hats for this podcast to another of her interests – Everything Disney!

You can also find out more about how Nicole may be able to assist you and your family on your celiac journey at www.freshstartnutrition.ca

Here are the helpful links Nicole sent me –

Gluten-Free Dining in Walt Disney World: https://youtu.be/6dr4vpDFMDM

Gluten-Free Dining in Disneyland: https://www.youtube.com/watch?v=jJqw6Fnalqk

Email for special diet in Disney:  Special.Diets@DisneyWorld.com

Everything you need to know: https://disneyworld.disney.go.com/en_CA/guest-services/special-dietary-requests/

Erin McKenna’s Bakery NYC:  https://www.disneysprings.com/dining/erin-mckennas-bakery-nyc/

Gluten-Free Churros: https://disneyworld.disney.go.com/en_CA/dining/animal-kingdom/nomad-lounge/

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

I’m again speaking with Ellen Bayens of theceliacscene.com to go over some of the articles she has brought to our attention over the past month and allow me to give my opinions and insight.

Sometimes we come across a company that is doing their best to meet our gluten free needs, but may not have the foundational knowledge of the gluten free diet to do so. This was the case with a storefront that sold ice cream and offered their on-site made gluten free cones. Ellen was able to speak with the owner regarding the questionable safety of the cones and now the company is better informed and able to let their celiac customers know they cannot guarantee the cones to be gluten free. Their understanding and current transparency is a plus for us.

Ellen also made us aware of a manufacturing change at Prana Foods to no longer offer gluten free oats in their products. There is somewhat of a disconnect between producers and consumers in getting this important information out there.

We hear an update on story Ellen and I spoke about in August 2022 when I interviewed author Ann Campanella. Recently Ann has won an award for her book Celiac Mom. You can listen to the original conversation at – https://bit.ly/Ep233CeliacMom.

Ellen has discovered a new cookie/dessert jar business that is gluten free and also vegan, so dairy and egg free as well. The special news here is that the products are very decadent and can be shipped across Canada – so if you want to send a tasty gift to someone this might be a good bet!

CELIAC SCENE NEWS

Ice Cream Vendor Dishes Up Transparency
Reminder: Prana Organic Rescinds Gluten-Free Label on Oat Products
Celiac Mom Memoir Readers’ Favorite Silver Medalist Winner

GLUTEN-FREE PRODUCTS & SERVICES

Shop KR’s Cookies & Desert Jars – Gluten-Free & Vegan!

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

On this episode I speak with Kristin Longacre about her experiences initially when her son was diagnosed with food sensitivities and later when she herself was diagnosed with Celiac Disease. Living in the US, Kristin found only minimal resources to help her understand the gluten free diet. After struggling to eat gluten free Kristin decided to become a Certified Holistic Nutrition Coach specializing in helping others to master both the gluten free diet and lifestyle. You can find out more about Kristin and how she helps others on her website www.kristinlongacre.com

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

It’s the beginning of September, and I’m fortunate to have my monthly discussion with Ellen Bayens of theceliacscene.com to chat about the articles and happenings she has brought to our attention over the past month.

First, I have Ellen explain to me the very impactful discovery that was made at McMaster University in co-operation with other colleagues regarding the “spark” that sets off the gluten reaction.

Ellen tackles the “gluten friendly” meal descriptions we’re seeing on menus and looks at what can be done to clarify this situation.

We talk about bloating even on a gluten free diet, a topic Selena DeVries RD raised on Instagram.

Food trucks are making their mark in our cities, but Gluten Free Food Trucks can be life-changing for those of us uncomfortable attending large public events. Ellen breaks down the gluten free food truck craze on Vancouver Island.

My August has been dominated by Camp Celiac and I take some time to talk about our sponsors and how their donations made a huge difference to enhance the camp for everyone.

Here’s the links –

CELIAC SCENE NEWS

McMaster Research Team Discovers Celiac Disease Trigger
What You Can Do if a Restaurant Says Gluten-Free but NOT Celiac Safe
Famished Foodie’s August Gluten-Free Food Truck Video Tour

SELENA RD, INSTAGRAM CORNER

How to Fix Constipation & Bloat
Work with Selena

GLUTEN-FREE RECIPES

Corn Thins Recipe Ideas – Instagram Inspiration!

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

On this podcast I speak with Registered Dietitian Nicole Byrom regarding what happens within a family once a child receives a diagnosis of Celiac Disease. We all want our kids to live healthy, fulfilling lives and throwing celiac disease into the mix just gives us more challenges.

Nicole mentioned a couple of resources she developed with Celiac Canada –

Presentation on Iron Deficiency https://www.youtube.com/watch?v=RJoQ1zEy80o

My Shared Kitchen https://www.youtube.com/watch?v=BatYlJTkjgU

You can also find out more about how Nicole may be able to assist you and your family on your celiac journey at https://freshstartnutrition.ca/

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com