A Canadian Celiac Blog

It’s been a busy year for Celiac Canada and one highlight has to have been Melissa Secord and Caleigh McAulay RD attending the International Symposium on Celiac Disease held in Sheffield UK earlier this fall.

Both Melissa and Caleigh returned with so much information regarding ongoing and upcoming research along with best practices from other countries. Melissa shares with us some new theories for better diagnosis as well as questioning some ideas we have held as fact. Caleigh presented a poster on behalf of Celiac Canada regarding our recent State of Celiac Survey and learned so much from the many sessions and from other dietitians in attendance.

Celiac Canada was well represented by Melissa and Caleigh, and I was thrilled to have an enlightening conversation with them about their experiences at the Symposium.

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

It’s the beginning of November and that means I get to catch up with my friend Ellen Bayens of theceliacscene.com. Ellen and I speak about the petition being circulated by Celiac Canada regarding a tax benefit to help with the cost of the gluten free diet. This important petition must be signed by November 10^th, so if you haven’t signed and it’s before November 10, please follow the link, and send it on to friends and family – there’s strength in numbers!

Petition to Change the Way Celiacs Receive a GF Food Tax Credit

Recently there was a very broad recall of frozen waffles and pancakes which included some gluten free products and many different brands. Please check the recall notice that Ellen has posted and open your freezer to make sure you don’t have any of the contaminated packages – this is very important.

National Recall: Various Brands | Gluten-Free Waffles | Listeria Monocytogenes

Cindi Little, the Everyday Gluten Free Gourmet has posted a very interesting article about the wheat starch flour blends that are currently being imported from Europe. Ellen and I have a lively discussion. I’ve used the wheat starch, and you may have already eaten it in some commercial gluten free foods.

What are We Going to do About Wheat Starch?

Have you ever wondered about the “Gluten Friendly” claims on a restaurant menu. Selena DeVries, a Registered Dietitian gives us her take on the term, as well, Ellen and I share our opinions.

Why I Love ‘Gluten-Friendly’ Menus

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

On this podcast, I had the pleasure of speaking with Nicole Byrom a Registered Dietitian who works with Celiac Canada. Nicole is changing hats for this podcast to another of her interests – Everything Disney!

You can also find out more about how Nicole may be able to assist you and your family on your celiac journey at www.freshstartnutrition.ca

Here are the helpful links Nicole sent me –

Gluten-Free Dining in Walt Disney World: https://youtu.be/6dr4vpDFMDM

Gluten-Free Dining in Disneyland: https://www.youtube.com/watch?v=jJqw6Fnalqk

Email for special diet in Disney:  Special.Diets@DisneyWorld.com

Everything you need to know: https://disneyworld.disney.go.com/en_CA/guest-services/special-dietary-requests/

Erin McKenna’s Bakery NYC:  https://www.disneysprings.com/dining/erin-mckennas-bakery-nyc/

Gluten-Free Churros: https://disneyworld.disney.go.com/en_CA/dining/animal-kingdom/nomad-lounge/

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

I’m again speaking with Ellen Bayens of theceliacscene.com to go over some of the articles she has brought to our attention over the past month and allow me to give my opinions and insight.

Sometimes we come across a company that is doing their best to meet our gluten free needs, but may not have the foundational knowledge of the gluten free diet to do so. This was the case with a storefront that sold ice cream and offered their on-site made gluten free cones. Ellen was able to speak with the owner regarding the questionable safety of the cones and now the company is better informed and able to let their celiac customers know they cannot guarantee the cones to be gluten free. Their understanding and current transparency is a plus for us.

Ellen also made us aware of a manufacturing change at Prana Foods to no longer offer gluten free oats in their products. There is somewhat of a disconnect between producers and consumers in getting this important information out there.

We hear an update on story Ellen and I spoke about in August 2022 when I interviewed author Ann Campanella. Recently Ann has won an award for her book Celiac Mom. You can listen to the original conversation at – https://bit.ly/Ep233CeliacMom.

Ellen has discovered a new cookie/dessert jar business that is gluten free and also vegan, so dairy and egg free as well. The special news here is that the products are very decadent and can be shipped across Canada – so if you want to send a tasty gift to someone this might be a good bet!

CELIAC SCENE NEWS

Ice Cream Vendor Dishes Up Transparency
Reminder: Prana Organic Rescinds Gluten-Free Label on Oat Products
Celiac Mom Memoir Readers’ Favorite Silver Medalist Winner

GLUTEN-FREE PRODUCTS & SERVICES

Shop KR’s Cookies & Desert Jars – Gluten-Free & Vegan!

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

On this episode I speak with Kristin Longacre about her experiences initially when her son was diagnosed with food sensitivities and later when she herself was diagnosed with Celiac Disease. Living in the US, Kristin found only minimal resources to help her understand the gluten free diet. After struggling to eat gluten free Kristin decided to become a Certified Holistic Nutrition Coach specializing in helping others to master both the gluten free diet and lifestyle. You can find out more about Kristin and how she helps others on her website www.kristinlongacre.com

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

It’s the beginning of September, and I’m fortunate to have my monthly discussion with Ellen Bayens of theceliacscene.com to chat about the articles and happenings she has brought to our attention over the past month.

First, I have Ellen explain to me the very impactful discovery that was made at McMaster University in co-operation with other colleagues regarding the “spark” that sets off the gluten reaction.

Ellen tackles the “gluten friendly” meal descriptions we’re seeing on menus and looks at what can be done to clarify this situation.

We talk about bloating even on a gluten free diet, a topic Selena DeVries RD raised on Instagram.

Food trucks are making their mark in our cities, but Gluten Free Food Trucks can be life-changing for those of us uncomfortable attending large public events. Ellen breaks down the gluten free food truck craze on Vancouver Island.

My August has been dominated by Camp Celiac and I take some time to talk about our sponsors and how their donations made a huge difference to enhance the camp for everyone.

Here’s the links –

CELIAC SCENE NEWS

McMaster Research Team Discovers Celiac Disease Trigger
What You Can Do if a Restaurant Says Gluten-Free but NOT Celiac Safe
Famished Foodie’s August Gluten-Free Food Truck Video Tour

SELENA RD, INSTAGRAM CORNER

How to Fix Constipation & Bloat
Work with Selena

GLUTEN-FREE RECIPES

Corn Thins Recipe Ideas – Instagram Inspiration!

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

On this podcast I speak with Registered Dietitian Nicole Byrom regarding what happens within a family once a child receives a diagnosis of Celiac Disease. We all want our kids to live healthy, fulfilling lives and throwing celiac disease into the mix just gives us more challenges.

Nicole mentioned a couple of resources she developed with Celiac Canada –

Presentation on Iron Deficiency https://www.youtube.com/watch?v=RJoQ1zEy80o

My Shared Kitchen https://www.youtube.com/watch?v=BatYlJTkjgU

You can also find out more about how Nicole may be able to assist you and your family on your celiac journey at https://freshstartnutrition.ca/

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

I’m grateful that Ellen keeps such good tabs on all the celiac and gluten free news as it comes out. She is the first person I go to if I hear of something new and she’s usually already on top of it. As well she is able to vet the articles that come across her desk and give us the information we not only need, but want. This month a great deal focussed on the affordability of the gluten free diet. This is something Celiac Canada is taking very seriously and are working with the whomever will listen in an effort to stem this tide, which is clearly hitting everyone, but it appears is hitting us harder.

Ellen and I also spoke about travelling gluten free and she mentioned a cruising website – celiaccruise.com

Here’s links for the other subjects we discussed –

CELIAC SCENE NEWS

Rising Food Costs Continue to Concern Celiacs
Colorado Study Supports Universal Screening for Celiac Disease in Children
Navigating Japan with Celiac Disease: Safe Food
Could You Host an International Student with Celiac Disease?
Cruising with Celiac Disease: A Journey of Culinary Comfort

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

I have Cindi the EverydayGlutenFreeGourmet back with me on the podcast to discuss a list she recently published that caught my eye called “29 Tips for Cooking with Gluten Free Flour”. The tips span a range for using gluten free flours in many baked goods as well as in recipes for cooking meals.

You can download the list yourself by going to her website everydayglutenfreegourmet.ca.

You can also find Cindi’s Gluten Free Flour Conversion Chart from her website at everydayglutenfreegourmet.ca/gluten-free-flour-conversion-chart/

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

It’s the beginning of July, so I have the pleasure of talking with Ellen Bayens of theceliacscene.com to chat about interesting articles she has brought to our attention over the past month.

We talk about a uniquely helpful Facebook group for celiac families –

https://www.facebook.com/groups/CeliacParents/. This group was started by Ellen and has been helping families for ten years. If yours is a celiac family, this would be a great resource to check out.

We also spoke about the Conquer Study and how families with celiac children can get involved. Here’s a link https://redcap.ualberta.ca/surveys/?s=4FF8WHPN7447XNFM

You might also want to find out more about the resource that is Selena DeVries RD @ celiac_dietitian on Instagram.

Ellen mentioned world traveller Mark Johnson – you can find him on Facebook at  https://www.facebook.com/celiacexplorer/

CELIAC SCENE NEWS

Celiac Parents & Parents of Celiac Facebook Group Celebrates 10 Years
Conquer Celiac Seeking Childen & Caregivers to Interview

SELENA RD, INSTAGRAM CORNER

We can’t guarantee there won’t be any cross contamination …
How to order a Diary Queen Blizzard
Top 3 mistakes celiacs make when eating out
Paper straws & gluten
Gluten-free claims on oat beverages
Celiac disease – impact on mental health
Eating a strict gluten-free diet but still feeling bloated?
Celiac Dietitian at Your Finger Tips – Tuesday Q & A
Work with Selena

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com