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Ep 216 April 2022 Roundup
Let’s start the blog with the show notes for this Episode –
On this episode I speak with Ellen Bayens of The Celiac Scene.com about things that have been of interest in the celiac and gluten free world over the past month. Ellen and I have a discussion about bloating – something that was never really a symptom for me, but as a symptom it should be talked about more. Ellen tells us of the recent product recall from Cavendish Farms, along with details of the new non-gluten status of Earth’s Own oat beverage. The website to sign up for product recalls with the Canadian Food Inspection Agency is – https://inspection.canada.ca/english/util/listserv/listsube.shtml. We both get wrapped up in a recent episode of Dr. Phil where he talks to a woman who is so fearful of ingesting gluten that she is changing everything to accommodate her fears. Dr. Phil gives us some valid information on how to evaluate a fear like this. Ellen found the evaluation criteria transposed well to help her in another area of her life.
Ellen gives me her thoughts on a few of my recent podcast conversations including Dr. Melissa Ing, The Allergy Chef and Adam, who is Deanna’s boyfriend. We also talk about how honest Aaron is on my Gluten Free Weigh In podcast after he was recently “glutened”.
We round out our discussion with Selena’s 15 Gluten Free Finds from Costco and my review of a recent online cooking class I participated in with Cinde, the Everyday Gluten Free Gourmet.
• Did You Keep Bloating a Secret? You’re Not Alone!
• Class 1 Food Recall Cavendish Farms Classic Hash Brown Patties & Potato Patties
• Beware: Earth’s Own Products (with gluten) Now Arriving at Coffee Shops
• Celiac Frozen with Fear Meets with Dr. Phil• Interview with Dr. Melissa Ing, Dental Educator – Ep 213
• Interview with The Allergy Chef – Ep 214• Adam – Dating a Celiac – Ep 215
GLUTEN-FREE WEIGH IN PODCAST with Aaron
• Bariatric Surgery Prep Leads to Surprise Diagnosis with Celiac Disease
• Preparing for Bariatric Weight-Loss Surgery• 15 Gluten-Free Finds at Costco
GLUTEN FREE RECIPES & ONLINE CLASSES
• Everyday Gluten Free Gourmet Zoom Class Calendar- $30/kitchen for most classes. Invite friends & family
- March 23 | Beautiful Buttermilk Biscuits
- April 2| Yeast Bread Series – Pizza
- April 9 | Understanding Gluten Free Flour
- April 27: Homemade Pasta
- May 6 – Master Gluten Free Pastry
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
My Thoughts –
I have to admit, when I saw the program notes for the recent Dr. Phil show, I just had to record it. I also texted Ellen, so she wouldn’t miss it. I’m not sure I knew what to expect. I’ve met lots of people on a broad scale of their fear of ingesting gluten. Some people have more dramatic digestive reactions, so I had always put the level of “fear” down to that.
For me, I suppose I was most fearful at first when I was learning how to read labels and what questions to ask in a restaurant. Over the years, knowledge has alleviated most of my fear, although I can certainly relate to some of the behaviours mentioned on the show, like not trying a new food if I had a demanding social situation coming up in the next day or so.
I thought the comment about OCD (Obsessive Compulsive Disorder) from Dr. Phil was a good one, as it often felt to me like I was going through some sort of ritual with my food handling (separating the gluten from the gluten free, having my separate toaster, never re-using a plate or cutlery). The reality is that none of these behaviours are obsessive in my mind. They are just the series of checks that must be done to ensure a food is gluten free and safe.
I have to think that some of the behaviours mentioned involve control. The guest wanted to ensure she was always in control of any food she came into contact with. Some of her methods are a bit extreme and not very rational, but the idea of being in control of your food is definitely something we, as requiring a gluten free diet should strive for. Hopefully, we can all learn something from how these behaviours were presented and allow us to evaluate how rational our own behaviours are.
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Ep 215 The Gluten Perspective
Let’s start the blog with the show notes for this Episode –
This week I chat with someone who is almost a part of our family. My daughter Deanna’s boyfriend Adam has learned a great deal about celiac disease and the gluten free diet over the past few years. His perspective is from someone who has no eating restrictions. We often wonder how the rest of the world sees us, and how we can best help them to cope with our eating restrictions. Adam takes us through his education on celiac disease, what he expects when they eat away from home and, how he copes with educating his family and friends, as well as being protective of Deanna.
Deanna and Adam Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
My Thoughts –
From a parental point of view, it’s certainly comforting that someone else is looking out for my daughter and trying to keep her safe. It’s hard enough to go back in time to remember my learning curve about celiac disease, but in Adam’s case, it’s third person. He has to understand the condition, understand how to eat safely, and how to educate others who are around Deanna. In our household, I taught the family as I learned. Deanna was only five when she was diagnosed, so she doesn’t remember her life before celiac. My husband saw me suffer with digestive issues for years and was empathetic and helpful in any way he could be. My younger daughter doesn’t know anything different.
That worked at home, but eventually Deanna was going to go out into the world and needing to stay safe as an adult. She takes her need for the gluten free diet in stride, and it’s that easy-going attitude that has rubbed off on Adam. They both know the severity of the condition, but also have strategies worked out to keep Deanna safe. What became clear in my conversation with Adam was the responsibility he takes on to ensure that “his” world is safe for her. His world includes his family, friends, family traditions, vacations, and everyday situations.
Those of us with celiac disease, for the most part, started our education about gluten after we received our diagnosis. In Adam’s case, it started when he met Deanna. We continue to learn everyday how to make our daily meals satisfy and safe. Adam, too will continue to learn. Our motivation is our health, his motivation is caring for someone special – so different and not different at all.
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Ep 214 In Conversation with The Allergy Chef
Let’s start the blog with the show notes for this Episode –
On this episode I’m welcoming an extraordinary individual, not only for what she has accomplished, but for the simple fact that she’s still alive. Kathlena is The Allergy Chef, mostly because her list of allergies is so long that she had to come up with recipes to make meals from the foods she could eat. Kathlena went on to set up a powerful website to serve the multi-allergy community. Among her allergies are wheat and corn, but it is her severe sensitivity that would give anyone pause. She has started a website and program called RAISE to provide a multitude of resources to the allergy community. A discount code has been extended to podcast listeners – acc50 for 50% off the first month of membership on the RAISE website. As well kids online baking classes can be accessed at freeandfriendlyfoods.com/collections/online-courses
Main website: raise.theallergychef.com
Instagram: @theallergychef
Kathlena The Allergy Chef with her respirator Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
My Thoughts –
It doesn’t happen often with podcast guests, but I was overwhelmed after talking with Kathlena. Receiving a diagnosis of celiac disease and having to change your eating for the rest of your life is enough to put most people into a tailspin, and that’s understandable – gluten free is hard. The challenge Kathlena faces and is overcoming is monumental.
We all hear people say – “if I couldn’t eat bread (or a particular pizza, or a particular bagel), I’d die”. Well those of us eating gluten free know that no one is going to die switching to gluten free. In Kathlena’s case, she could die, if she were to eat a normal diet, or even a strict gluten/wheat free diet.
We know celiac disease is not an allergy, and the more I think about it, the more I see the distinction. As I mentioned I have a severe allergy to flaxseed. My reaction to flaxseed is digestive, but it’s much more violent than my reaction to gluten. My gluten reaction does last longer, than my reaction to flaxseed, but I’ve learned to cope with it better. The sum total is my complete avoidance of both gluten and flaxseed – if there’s a chance either one is in a food, I have to give it a miss.
Many people with celiac disease have or develop allergies to other foods. For me, it happened about four years after my celiac diagnosis, just when I thought I had everything under control. I know celiacs who can’t have eggs, or potatoes, or corn (not as sensitive as Kathlena) and an allergy to lactose or milk is not uncommon.
I’ve always looked at my “extra” allergy as another layer of avoidance. It wasn’t until I spoke with Kathlena that I realized the parallels between struggling with celiac disease and struggling with one or more allergies. In the case of allergies, the struggle is compounded by adding on multiple foods or substances. Kathlena’s drive to make resources for the allergy community is more than admirable. She is smart, a go-getter and a survivor. In her situation that’s what it takes to keep going and to keep giving back.
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Ep 213 Update on Dental Issues and Celiac Disease
Let’s start the blog with the show notes for this Episode –
I’m welcoming back to the podcast Dr. Melissa Ing who is a well accomplished dental educator with a specific interest in celiac disease. Dr. Ing shares with us the information she presented in two lectures at the recent Chicago Midwinter Conference. Her first lecture was titled “Celiac Disease, Non-celiac Gluten Sensitivity and Your Dental Patients”. The second lecture was about nutritional influences on oral and systemic wellness. Melissa is very much into the “Mouth-Body Connection” and teaching a whole-body approach to dental professionals. In 2020, Melissa put together articles she wrote for the CCA’s Better Living Gluten Free Publication on Oral Health. Here is the link to that publication –
https://conta.cc/3tEPeD4 This is the article Melissa suggested you might want to share with your dental professionals to help them learn more about celiac disease.
Melissa has been a guest on two episodes of A Canadian Celiac Podcast –
Episode 106 Celiac Disease and Dental Education
Episode 169 Celiac Disease and the Dental Office
These are the samples of different grains Dr. Ing uses for her “game” during her lectures.
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
My Thoughts –
By the time most of us get a diagnosis of celiac disease, we’ve seen our fair share of doctors from different specialties. When I think back to the doctors I consulted or were referred to, I certainly don’t count my dentists on that list. After talking with Dr. Melissa Ing, I can see how a dental professional could have played a part in my eventual diagnosis.
Melissa was very kind with her time, and outside of our recording she let me pick her brain about some personal dental issues and how they related to the conditions she mentioned. I remember once my dentist, after seeing a clear yellow line on my front teeth suggested that I most likely had a high fever when those teeth were developing or maybe when they were pushing through my gums. I didn’t pay much attention at the time, as I was undergoing a procedure with him to remove the lines.
In hindsight (isn’t it great how hindsight works?), what he was actually trying to explain to me was that our teeth can tell the story of our health. This is all the more important when it comes to recent research linking dental health with other conditions including alzheimer’s disease. We’ve all been told how important flossing is, and like many of us, my flossing habit comes and goes. Dr. Ing stressed the importance of flossing for good gum health, which is important on the list of things we can do to try to stave off alzheimer’s.
Whenever I speak with Dr. Ing, I learn something. This time it made me realize how the teeth can tell a story, and how integral teeth and gum health is to our overall health. I best get out the floss, this time the habit is going to stick.
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Ep 212 March 2022 Roundup
Let’s start the blog with the show notes for this Episode –
Ellen Bayens of theceliacscene.com has given us some great articles to look at this month. Somehow, she found an article written on the issues of cross contamination in restaurants in Malta. It’s amazing to see that celiacs in another part of the world with a very diverse cuisine from ours have the same issues ordering food in restaurants. As well there is an interesting study that was done recently looking at the blood tests done with children and how indicative they are of a final diagnosis of celiac disease. The aim of this study is to identify a benchmark level for blood tests that would indicate a biopsy for a child is not necessary.
We discuss the curious issue of Novak Djokovic, the international tennis star who has publicly said that he is on a gluten free diet for his health. There is more behind this story, and much of it will leave you with more questions than answers.
Are you familiar with the FODMAP diet? Ellen explains the premise of the diet and how it is being used by some celiacs who are struggling to gain remission from their symptoms. In Episode 93 of this podcast, I interviewed Steven J. Singer, who runs Fody Foods, helping those who are using the diet as a tool towards better health.
Ellen gives us more information on how you can post questions on Instagram for Selena DeVries @celiac_dietitian. As well Selena offers a focused Facebook group for those with persistent symptoms, along with courses and assistance on her website www.healthbean.ca.
Ellen and I go on to speak about food including the Taco Revolution foodtruck, Trumps Foods Hazelnut Torte on Amazon.ca, the Everyday Gluten Free Gourmet online cooking classes and Stella’s Perogies, which my daughter recently found in Ontario at a Metro store.
Trumps Foods Gluten Free 9″ Chocolate Hazelnut Torte • Restaurant Cross-Contact Concerns are Common to Celiacs World Wide
• Standards for Diagnosing Celiac Disease in Children, Without Biopsy, Continue to Evolve!
• Is Gluten-Free Tennis Superstar Novak Djokovic Undermining our Credibility?
• Low FODMAP Diet Found to Improve GI Celiac Symptoms in Celiacs• Tuesdays Instagram Questions & Answers Session (FREE!)
• Join Selena’s Symptom Relief Facebook Group
EVERYDAY GLUTEN FREE GOURMET ZOOM CLASS CALENDARMar 2 – Thai Curry & Salad Rolls
Mar 5 – Yeast Bread Series: Soft Dinner Rolls
March 23: Beautiful Buttermilk Biscuits
April 2: Yeast Bread Series – Pizza
April 9: Understanding Gluten Free Flour
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
My Thoughts –
Sometimes you get to the point where you think you’ve heard it all. This is never the case with celiac disease, from the variety of symptoms to diagnosis stories, there is always more to learn. The story Novak Djokovic told about the testing that led him to believe he has a gluten sensitivity is one I’ve heard before, among others.
When I operated my bakery, I had the privilege of speaking one-on-one with most of my customers. They wanted to explain their difficulties with gluten free food or the gluten free lifestyle and often wanted to share their diagnosis stories. I was always willing to listen, in hopes I might be able to offer some advice. I heard too many stories of stool samples being sent to labs in Texas – after which the patient would receive an extensive list of the foods they cannot eat. These lists were not limited to gluten, or even lactose, but went on with lists of food additives, vegetables, meats and grains. The question I got after I was shown one of these lists was – What CAN I eat? These tests may have a purpose, and for some they may even identify a condition that has slipped through the cracks. My response was usually that I didn’t know how the results were arrived at, and didn’t have much faith in them. My attitude was – If a test is valid and useful for medical practitioners it would be available in Canada and not only from a pricey lab (hundreds of dollars) in the US. You may not agree with me, but seeing the test results without any instructions on what to eat, or follow up to re-test or monitor, didn’t seem like a valid strategy for such a dramatic change in diet.
Once, on the topic of diagnosis, I was told about the “loaf of bread” test, similar to the one given to the tennis star. When I appeared sceptical, I was assured by my customer that the person who performed the test, was not legally able to diagnose celiac, so this was the best alternative. Clearly this was not a qualified medical practitioner, or they could have at least asked the patient’s doctor to request lab work. My customer thought I would be happy to hear this test wasn’t done by anyone qualified to make a full diagnosis. To the contrary, I was upset to think that someone could perform (as Ellen called it) a party trick, change someone’s diet for life and not even attempt to get a qualified diagnosis.
Most women who have had a child remember the “test” that was performed over their pregnant belly with a ring on a string to determine the sex of the baby. That party trick had a 50/50 chance of being correct, and no one ever took it seriously. These other “tests” have much less validity, and people pay for the privilege, which makes them want to believe, and often they delay or defer any valid testing for celiac disease – and we all know that doesn’t go well.