Ep 244 CCA Newly Diagnosed Pathway
Let’s start the blog with the show notes for this Episode –
I’m excited to introduce you to a program from the Canadian Celiac Association directed towards those individuals newly diagnosed, their family and caregivers, along with others needing a refresher on the gluten free diet. Nicole Byrom who is a Registered Dietitian working with the CCA, is back on the podcast to tell us about the Newly Diagnosed Pathway. This program is a curated collection of emails that contain different resources and are sent on a periodic basis to educate and inform those who have signed on to the pathway. Nicole mentioned the CCA website, www.celiac.ca; the information email address, info@celiac.ca; along with the helpline phone number (905) 507-6208. When you open the website, you will also be prompted to fill out the State of Celiac Disease in Canada Health Survey, as well you can find the Newly Diagnosed Pathway under the What’s New tab https://www.celiac.ca/newlydiagnosed/.
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
My Thoughts –
It’s a stretch to remember back when I was newly diagnosed. I relied almost exclusively on the information provided by the Canadian Celiac Association. How things have changed. Nowadays, the internet is usually the first place – or specifically “google” where the newly diagnosed go to start their gluten free journey.
Herein lies the flaw. Although the internet has thousands of resources regarding gluten free, most newbies don’t know where to start or what information is reliable. We often see people asking questions on facebook pages and, although there are no dumb questions, these questions form the base of information on the gluten free diet with which learning begins. Clearly there is a disconnect when someone is first diagnosed.
For me, I was told gluten was my problem, but I would be fast-tracked to see a dietitian, so that’s where I would begin my education on gluten free. This was many years ago, and at the appointment, I was given a form to fill out to become a member of the CCA, along with a package of printed material to get me started.
These days, it may take a while to see a dietitian, if at all. Information online may not only be confusing, but can be contradictory. That’s the last thing someone needs when all they want to do is feed themselves (or their child, or their senior relative) safely.
The CCA now has the definitive answer. They’ve thought through what someone needs to know when. During our conversation, Nicole remarked that after the initial emails, you would receive some less important information. She immediately stopped herself to ask me to cut that bit, because all the information was important, and best it be absorbed on a carefully managed schedule.
Well thought out, is a good representation of the program. No program can be all things to all people, and it shouldn’t try to be, but this pathway will stand hand in hand with the newly diagnosed during a most difficult time – Thanks CCA!