It’s the beginning of June, so for me that means another opportunity to speak with Ellen Bayens of theceliacscene.com to discuss articles, studies and topics of interest Ellen has presented to us over the past month. This month Ellen gave us a study that looks at the pattern of healthcare visits of someone not yet diagnosed with celiac disease. This is considered to be the “diagnostic window” and past studies have been able to help with speedier diagnosis once a broad pattern has been established. This is already being done for some cancers and is currently being studied as an approach to celiac disease, parkinsons and other digestive conditions. If physicians were able to identify the need for celiac testing earlier, we could all benefit. This promoted a discussion of the uses for artificial intelligence as a tool for doctors.

Ellen published an article titled “My Mother’s Long & Winding Road to Diagnosis”. This is a complicated story with many twists and turns, and it wasn’t until I reached the end of the article that I realized this was actually written by Ellen about her Mother. She showed such courage and grace during very difficult times. Ellen and I give a quick synopsis, but I encourage you to read the entire article. We then discussed how important it is to be positive about your diagnosis, which can be difficult at first, but should be a goal.

Soft Serve Ice Cream and Gluten Free Waffle Cones – what more is there to say!

• Pattern of Health Care Visits Predictor of Future Celiac Disease Diagnosis?
• My Mother’s Long & Winding Road to Diagnosis

• Pure Lovin’ Chocolate – Oat Milk & Soy Soft Serve in GF Waffle Cones
• Softy’s Oat Milk & Coconut Milk Soft Serve in GF Waffle Cones

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

On this episode I speak with Justine Dowd PhD who, along with having celiac disease herself, is a Health and Wellness Specialist and Wellness Coach. Justine and I tackle the emotional topic of infertility as it relates to celiac disease. This topic includes issues around fertility for those diagnosed, along with the uncertainty for those yet to be diagnosed. Both Justine and I have suffered miscarriages, which are not uncommon, but are emotionally difficult for an entire family. Justine tells us about the gut-brain connection and goes through some of her strategies to assist couples preparing for an upcoming pregnancy. As well, Justine talks specifics about some of the therapy she used to help her conceive and maintain a pregnancy. She mentions a Dr. Sher and you can find out more information at his website – sherfertilitysolutions.com

Justine holds online educational events regularly, and you can find out more on her website – justinedowd.ca

You can follow her on Instagram at justinedowd.phd

You can follow her on Facebook at JustineDowdPhD

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

Happy May, Celiac Awareness Month!

At the beginning of each month, I speak with Ellen Bayens of theceliacscene.com to discuss articles, studies and topics of interest Ellen has presented to us over the past month. Of great concern to consumers in general, and gluten free consumers in particular, is the rising cost of food. In an effort to bring our unique perspective on these issues in front of lawmakers, Celiac Canada held a breakfast event on Parliament Hill recently. There are many aspects to the CCA message including the emphasis on the gluten free diet costing up to five times as much as gluten food, the unworkable tax relief that is not an effective solution as well as the lack of nutritional fortification in our gluten free processed foods.

Dr. Peter Green debunks six common myths of celiac disease. I found this particularly fascinating, as science will always win out these emotionally charged discussions. Ellen also brought us an article on new guidelines for physicians to diagnose and treat their celiac patients. Selena DeVries RD shares valuable information about over-the-counter allergy medications as well as her advice on digestive enzymes.

Ellen has done it again – she’s found new foods in her area. She not only found a cafeteria-style build your own pizza place, but also gluten free waffle cones.

Here are links to the articles we spoke about –

NEWS FROM THE CELIAC SCENE

• The Struggle is Real. The Rising Cost of Gluten-Free Food
• Experts Bust 6 Common Myths about Celiac Disease
• Updated Guidelines for the Ongoing Care of Celiacs
• M&M Angus Beef Burgers Subject to CFIA Recall – Gluten

SELENA’S CORNER

• Digestive Enzymes – Yay or Nay for Celiacs?
• Over-the-Counter Gluten-Free Allergy Medications – Adults & Children

GLUTEN-FREE PRODUCTS & SERVICES

• Introducing Pure Lovin’ Chocolate Vegan, Gluten-Free Waffle Cones
• MOD Pizza Scores a Double Header on Vancouver Island

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.comOther Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

On this episode I speak with Dr. Dan Leffler who is heading an international study to trial a medication for celiac disease. The medication is TAK-062 and the trial is called Illuminate-62. The trial is looking for individuals who are confirmed celiac, eating a gluten free diet, but still experiencing symptoms. At the time of our conversation the study has yet to launch in Canada, but when it does, Celiac Canada will have the information on their website www.celiac.ca.

You can find out more about the trial at –

ILLUMINATE Study – Home

Celiac is seriously exhausting restrictive time-consuming frustrating isolating . Celiac is seriously exhausting restrictive time-consuming frustrating isolating . Maybe one day it won’t have to be. See If You May Qualify Clinical research studies for those with celiac disease The ILLUMINATE Studies are looking to evaluate the safety and effectiveness of investigational medications for celiac …

Takeda launches the Illuminate-062 Study, a Phase 2 clinical trial of a medicine designed to help improve control of celiac disease | BeyondCeliac.org

Kate Avery, MPH, Director of Research & Patient Engagement Takeda Pharmaceuticals recently launched the Illuminate-062 Study , a Phase 2 clinical trial to study TAK-062, a gluten digesting enzyme, as a potential treatment for celiac disease . The trial is taking place in the United States, Canada and Europe, and is currently enrolling participants.

and for more technical information at – https://clinicaltrials.gov/ct2/show/NCT05353985

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com