• Ep 218 Update on Food Banks and Gluten Free

    Let’s start the blog with the show notes for this Episode –

    The topic of Food Security is one that I speak about often with others in leadership roles in Canada’s gluten free community.  I thought I’d bring some of those conversations to the podcast.  First, I speak with Jessica Danford who has devoted a great deal of time and energy into getting gluten free food into the hands of those who need it, but are not able to afford it.  Jessica explains how to work with food banks and some of the complications they might be facing.  Jess was recently featured as an author in the book “She Moves Mountains”, which can be purchased at most book sellers.  You can also connect with Jess on Instagram @Jessicadanford.  I also talk about Bev Ruffo, who is from the Hamilton area.  There is no longer a CCA chapter in Hamilton, but Bev still keeps in touch with some of her celiac friends and they decided to get involved with gluten free food collection.  They even appeared at the recent Gluten Free Goodness Expo to accept food donations and have attendees sign a petition for the CCA – well done!

    I round out this episode with a discussion about the extraordinary efforts being made by the Manitoba Chapter of the CCA.  The President of the Chapter, Christa Dubesky, tells me how their group got involved with a food bank umbrella organization to prepare hampers for the gluten free clients.  Not only did they prepare hampers, they took on the job of getting donations, for most of the food.  If you would like to help out their efforts you can leave a message at their chapter office at (204) 772-6979 or refer to their website http://www.manitobaceliac.com/ and follow the donations link.

    I’m looking forward to attending the Gluten Free Garage in Toronto on May 29th, where Jessica and I will be at the CCA tent to accept food donations.  If you’ll be in Toronto at that time, we’d love to have you show up.  You can find out more at https://glutenfreegarage.ca/

    You can find out more about the CCA Save Me For Gluten Free Program at https://www.celiac.ca/get-involved/savemeforglutenfree/

    Sue’s Websites and Social Media

    Podcast https://acanadianceliacpodcast.libsyn.com

    Podcast Blog – https://www.acanadianceliacblog.com

    Email – acdnceliacpodcast@gmail.com

    Celiac Kid Stuff – https://www.celiackidstuff.com

    Baking Website – https://www.suesglutenfreebaking.com

    Instagram – @suesgfbaking

    YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

    Email – sue@suesglutenfreebaking.com

    Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

    My Thoughts

    Food Security, or insecurity as some call it, has always been something that I expected someone else to be responsible for.  At least once a year at our Chapter meetings we asked members to bring a non-perishable gluten free food donation and someone would be responsible for getting the donations to our local food bank.

    It wasn’t until covid became a part of all of our lives that I really took notice of the efforts of food banks to feed people who had lost their jobs, or were under other economic stress.  I decided every time I’d go grocery shopping, I’d buy something to donate at the front of the store on my way out.  I struggled with this simple gesture.  I really only wanted to purchase something that would go to someone who needed to eat gluten free.  I just couldn’t buy something gluten free and trust it would get to the right individual.  I ended up buying baby food and made sure it didn’t contain any gluten.

    It wasn’t long after that, in a conversation with Melissa Secord of the CCA that I heard about the idea of “Save Me For Gluten Free”.  I was in.  The thought of an organized program that could be adapted across the country to donate and receive gluten free food was a game changer.  We now how lots of people involved and there’s more potential for the idea to continue to do great and greater things.  You don’t have to be involved with the CCA to want to make a difference in the lives of fellow celiacs – you just have to want to.

    Comments Off on Ep 218 Update on Food Banks and Gluten Free
  • Ep 217 The Responsibilities of Gluten Free Food Producers

    Let’s start the blog with the show notes for this Episode –

    Ellen Bayens of The Celiac Scene.com is back for a lively and informative discussion of the regulations which form the basis of the obligations and responsibilities of food producers, and specifically gluten free food producers.  Have you wondered why some products in a grocery bakery don’t need ingredient and nutrition labels and some do?  What is the regulation concerning labelling foods being sold at a farmer’s market, or a coffee shop?  When labels are required, we need to see more than just the ingredients.  Ellen and I help you navigate the regulations around what food producers, restaurants and coffee shops must be able to tell you about the food you buy.

    If you have a concern in regard to a restaurant, call that CFIA (Canada Food Inspection Agency) at 1-800-442-2342 and they will refer the call to the closest office of the CFIA and have them contact you.

    If you have a product that you are concerned about refer to this website link –

    Report a food-related concern

    Personal Information Collection Statement All personal information created, held or collected by this department is protected under the Privacy Act. This means that you will be informed of the purpose for which it is being collected and how to exercise your right of access to that information.

    If you aren’t sure who to call, start by calling 1-800-442-2342.

    To find out more about food labelling requirements refer to this website link –

    Food labelling requirements checklist

    The following checklist is a self-assessment tool to help industry understand labelling requirements set out in the Food and Drugs Act and Regulations and the Safe Food for Canadians Act and Regulations. The checklist only covers core labelling requirements applicable to all foods.

    Sue’s Websites and Social Media

    Podcast https://acanadianceliacpodcast.libsyn.com

    Podcast Blog – https://www.acanadianceliacblog.com

    Email – acdnceliacpodcast@gmail.com

    Celiac Kid Stuff – https://www.celiackidstuff.com

    Baking Website – https://www.suesglutenfreebaking.com

    Instagram – @suesgfbaking

    YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

    Email – sue@suesglutenfreebaking.com

    Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

    My Thoughts

    We are taught to ask questions when we are in restaurants or talking to bake shops or anyone who we are purchasing food from.  Ellen has a terrific point when she says – “How questions are answered is as important and what the answers are”.

    If you ask questions often enough, you’ll come across a variety of answers.  Some of those answers are pleasant surprises, some are vague and inconclusive, and some are just misinformed.  We all hope for the pleasant surprises and are often ready to walk away when we realize the provider is misinformed about the gluten free diet.

    It’s the vague and inconclusive answers that often cause us to pause.  We are always taught – if you suspect gluten give the food a miss, but when confronted with confusing answers to our simple questions, we sometimes get drawn into a larger conversation.

    And then there is the situation I described in the podcast regarding white rice flour being sold at a local health food store.  I knew the white rice flour they were selling was not gluten free.  The store owner didn’t expressly say it was gluten free and, would have told anyone who asked the right question that answer.  I suppose the question we have to ask, is to ourselves.  How many of us, seeing white rice flour in a trusted health food store, would ask about its gluten status?  Should we?  I suppose we should.  Would we – not likely.  Is it deceptive of the health food store to omit labelling the white rice flour as may contain gluten? (I think it is.)

    It was recently suggested to me that the safety of small gluten free producers can’t be verified because “there are no regulations/standards really in place”.  Although this might be the way many people feel, it is fundamentally wrong.  There are regulations and standards, but it’s up to the food producer to learn them, and apply them.  That’s where our trust comes in, and our questions.  I want to trust, but I can only do that by asking questions.  Good thing I come armed with lots of questions.

  • Ep 216 April 2022 Roundup

    Let’s start the blog with the show notes for this Episode –

    On this episode I speak with Ellen Bayens of The Celiac Scene.com about things that have been of interest in the celiac and gluten free world over the past month.  Ellen and I have a discussion about bloating – something that was never really a symptom for me, but as a symptom it should be talked about more.  Ellen tells us of the recent product recall from Cavendish Farms, along with details of the new non-gluten status of Earth’s Own oat beverage.  The website to sign up for product recalls with the Canadian Food Inspection Agency is – https://inspection.canada.ca/english/util/listserv/listsube.shtml. We both get wrapped up in a recent episode of Dr. Phil where he talks to a woman who is so fearful of ingesting gluten that she is changing everything to accommodate her fears.  Dr. Phil gives us some valid information on how to evaluate a fear like this.  Ellen found the evaluation criteria transposed well to help her in another area of her life.

    Ellen gives me her thoughts on a few of my recent podcast conversations including Dr. Melissa Ing, The Allergy Chef and Adam, who is Deanna’s boyfriend.  We also talk about how honest Aaron is on my Gluten Free Weigh In podcast after he was recently “glutened”.

    We round out our discussion with Selena’s 15 Gluten Free Finds from Costco and my review of a recent online cooking class I participated in with Cinde, the Everyday Gluten Free Gourmet.

    NEWS FROM THE CELIAC SCENE

    • Did You Keep Bloating a Secret? You’re Not Alone!
    • Class 1 Food Recall Cavendish Farms Classic Hash Brown Patties & Potato Patties
    • Beware: Earth’s Own Products (with gluten) Now Arriving at Coffee Shops
    • Celiac Frozen with Fear Meets with Dr. Phil

    A CANADIAN CELIAC PODCAST

    • Interview with Dr. Melissa Ing, Dental Educator – Ep 213
    • Interview with The Allergy Chef – Ep 214

    • Adam – Dating a Celiac – Ep 215
     

    GLUTEN-FREE WEIGH IN PODCAST with Aaron

    • Bariatric Surgery Prep Leads to Surprise Diagnosis with Celiac Disease
    • Preparing for Bariatric Weight-Loss Surgery

    SELENA’S CORNER

    • 15 Gluten-Free Finds at Costco

    GLUTEN FREE RECIPES & ONLINE CLASSES

    • Everyday Gluten Free Gourmet Zoom Class Calendar

    Sue’s Websites and Social Media

    Podcast https://acanadianceliacpodcast.libsyn.com

    Podcast Blog – https://www.acanadianceliacblog.com

    Email – acdnceliacpodcast@gmail.com

    Celiac Kid Stuff – https://www.celiackidstuff.com

    Baking Website – https://www.suesglutenfreebaking.com

    Instagram – @suesgfbaking

    YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

    Email – sue@suesglutenfreebaking.com

    Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

    My Thoughts

    I have to admit, when I saw the program notes for the recent Dr. Phil show, I just had to record it.  I also texted Ellen, so she wouldn’t miss it.  I’m not sure I knew what to expect.  I’ve met lots of people on a broad scale of their fear of ingesting gluten.  Some people have more dramatic digestive reactions, so I had always put the level of “fear” down to that.

    For me, I suppose I was most fearful at first when I was learning how to read labels and what questions to ask in a restaurant.  Over the years, knowledge has alleviated most of my fear, although I can certainly relate to some of the behaviours mentioned on the show, like not trying a new food if I had a demanding social situation coming up in the next day or so.

    I thought the comment about OCD (Obsessive Compulsive Disorder) from Dr. Phil was a good one, as it often felt to me like I was going through some sort of ritual with my food handling (separating the gluten from the gluten free, having my separate toaster, never re-using a plate or cutlery).  The reality is that none of these behaviours are obsessive in my mind.  They are just the series of checks that must be done to ensure a food is gluten free and safe.

    I have to think that some of the behaviours mentioned involve control.  The guest wanted to ensure she was always in control of any food she came into contact with.  Some of her methods are a bit extreme and not very rational, but the idea of being in control of your food is definitely something we, as requiring a gluten free diet should strive for.  Hopefully, we can all learn something from how these behaviours were presented and allow us to evaluate how rational our own behaviours are.

  • Ep 215 The Gluten Perspective

    Let’s start the blog with the show notes for this Episode –

    This week I chat with someone who is almost a part of our family.  My daughter Deanna’s boyfriend Adam has learned a great deal about celiac disease and the gluten free diet over the past few years. His perspective is from someone who has no eating restrictions.  We often wonder how the rest of the world sees us, and how we can best help them to cope with our eating restrictions.  Adam takes us through his education on celiac disease, what he expects when they eat away from home and, how he copes with educating his family and friends, as well as being protective of Deanna.

    Deanna and Adam

    Sue’s Websites and Social Media

    Podcast https://acanadianceliacpodcast.libsyn.com

    Podcast Blog – https://www.acanadianceliacblog.com

    Email – acdnceliacpodcast@gmail.com

    Celiac Kid Stuff – https://www.celiackidstuff.com

    Baking Website – https://www.suesglutenfreebaking.com

    Instagram – @suesgfbaking

    YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

    Email – sue@suesglutenfreebaking.com

    Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

    My Thoughts

    From a parental point of view, it’s certainly comforting that someone else is looking out for my daughter and trying to keep her safe.  It’s hard enough to go back in time to remember my learning curve about celiac disease, but in Adam’s case, it’s third person.  He has to understand the condition, understand how to eat safely, and how to educate others who are around Deanna.  In our household, I taught the family as I learned.  Deanna was only five when she was diagnosed, so she doesn’t remember her life before celiac.  My husband saw me suffer with digestive issues for years and was empathetic and helpful in any way he could be.  My younger daughter doesn’t know anything different.

    That worked at home, but eventually Deanna was going to go out into the world and needing to stay safe as an adult.  She takes her need for the gluten free diet in stride, and it’s that easy-going attitude that has rubbed off on Adam.  They both know the severity of the condition, but also have strategies worked out to keep Deanna safe.  What became clear in my conversation with Adam was the responsibility he takes on to ensure that “his” world is safe for her.  His world includes his family, friends, family traditions, vacations, and everyday situations.

    Those of us with celiac disease, for the most part, started our education about gluten after we received our diagnosis.  In Adam’s case, it started when he met Deanna.  We continue to learn everyday how to make our daily meals satisfy and safe.  Adam, too will continue to learn.  Our motivation is our health, his motivation is caring for someone special – so different and not different at all.

  • Ep 214 In Conversation with The Allergy Chef

    Let’s start the blog with the show notes for this Episode –

    On this episode I’m welcoming an extraordinary individual, not only for what she has accomplished, but for the simple fact that she’s still alive.  Kathlena is The Allergy Chef, mostly because her list of allergies is so long that she had to come up with recipes to make meals from the foods she could eat.  Kathlena went on to set up a powerful website to serve the multi-allergy community.  Among her allergies are wheat and corn, but it is her severe sensitivity that would give anyone pause.  She has started a website and program called RAISE to provide a multitude of resources to the allergy community.  A discount code has been extended to podcast listeners  – acc50 for 50% off the first month of membership on the RAISE website.  As well kids online baking classes can be accessed at freeandfriendlyfoods.com/collections/online-courses

    Online Courses

    Learn from an allergy expert! You can spend hours upon hours learning directly from The Allergy Chef. We offer Boot Camps, Short Courses, and Master Classes.

    Main website: raise.theallergychef.com

    Instagram: @theallergychef

    Kathlena The Allergy Chef with her respirator

    Sue’s Websites and Social Media

    Podcast https://acanadianceliacpodcast.libsyn.com

    Podcast Blog – https://www.acanadianceliacblog.com

    Email – acdnceliacpodcast@gmail.com

    Celiac Kid Stuff – https://www.celiackidstuff.com

    Baking Website – https://www.suesglutenfreebaking.com

    Instagram – @suesgfbaking

    YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

    Email – sue@suesglutenfreebaking.com

    Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

    My Thoughts

    It doesn’t happen often with podcast guests, but I was overwhelmed after talking with Kathlena.  Receiving a diagnosis of celiac disease and having to change your eating for the rest of your life is enough to put most people into a tailspin, and that’s understandable – gluten free is hard.  The challenge Kathlena faces and is overcoming is monumental.

    We all hear people say – “if I couldn’t eat bread (or a particular pizza, or a particular bagel), I’d die”.  Well those of us eating gluten free know that no one is going to die switching to gluten free.  In Kathlena’s case, she could die, if she were to eat a normal diet, or even a strict gluten/wheat free diet.

    We know celiac disease is not an allergy, and the more I think about it, the more I see the distinction.  As I mentioned I have a severe allergy to flaxseed.  My reaction to flaxseed is digestive, but it’s much more violent than my reaction to gluten.  My gluten reaction does last longer, than my reaction to flaxseed, but I’ve learned to cope with it better.  The sum total is my complete avoidance of both gluten and flaxseed – if there’s a chance either one is in a food, I have to give it a miss.

    Many people with celiac disease have or develop allergies to other foods.  For me, it happened about four years after my celiac diagnosis, just when I thought I had everything under control.  I know celiacs who can’t have eggs, or potatoes, or corn (not as sensitive as Kathlena) and an allergy to lactose or milk is not uncommon. 

    I’ve always looked at my “extra” allergy as another layer of avoidance.  It wasn’t until I spoke with Kathlena that I realized the parallels between struggling with celiac disease and struggling with one or more allergies.  In the case of allergies, the struggle is compounded by adding on multiple foods or substances.  Kathlena’s drive to make resources for the allergy community is more than admirable.  She is smart, a go-getter and a survivor.  In her situation that’s what it takes to keep going and to keep giving back.

  • Ep 213 Update on Dental Issues and Celiac Disease

    Let’s start the blog with the show notes for this Episode –

    I’m welcoming back to the podcast Dr. Melissa Ing who is a well accomplished dental educator with a specific interest in celiac disease.  Dr. Ing shares with us the information she presented in two lectures at the recent Chicago Midwinter Conference.  Her first lecture was titled “Celiac Disease, Non-celiac Gluten Sensitivity and Your Dental Patients”.  The second lecture was about nutritional influences on oral and systemic wellness.  Melissa is very much into the “Mouth-Body Connection” and teaching a whole-body approach to dental professionals.  In 2020, Melissa put together articles she wrote for the CCA’s Better Living Gluten Free Publication on Oral Health.  Here is the link to that publication –

    Smile! It’s the Oral Health Issue

    As COVID-19 restrictions ease across Canada, many individuals will be heading back to the dentist for their regular cleanings and delayed appointments. One of the atypical signs of celiac disease is found in the mouth. We asked Melissa E. Ing, D.M.D.

    https://conta.cc/3tEPeD4

    This is the article Melissa suggested you might want to share with your dental professionals to help them learn more about celiac disease.

    Melissa has been a guest on two episodes of A Canadian Celiac Podcast –

    Episode 106  Celiac Disease and Dental Education

    Episode 169  Celiac Disease and the Dental Office

    These are the samples of different grains Dr. Ing uses for her “game” during her lectures.

    Sue’s Websites and Social Media

    Podcast https://acanadianceliacpodcast.libsyn.com

    Podcast Blog – https://www.acanadianceliacblog.com

    Email – acdnceliacpodcast@gmail.com

    Celiac Kid Stuff – https://www.celiackidstuff.com

    Baking Website – https://www.suesglutenfreebaking.com

    Instagram – @suesgfbaking

    YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

    Email – sue@suesglutenfreebaking.com

    Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

    My Thoughts

    By the time most of us get a diagnosis of celiac disease, we’ve seen our fair share of doctors from different specialties.  When I think back to the doctors I consulted or were referred to, I certainly don’t count my dentists on that list.  After talking with Dr. Melissa Ing, I can see how a dental professional could have played a part in my eventual diagnosis.

    Melissa was very kind with her time, and outside of our recording she let me pick her brain about some personal dental issues and how they related to the conditions she mentioned.  I remember once my dentist, after seeing a clear yellow line on my front teeth suggested that I most likely had a high fever when those teeth were developing or maybe when they were pushing through my gums.  I didn’t pay much attention at the time, as I was undergoing a procedure with him to remove the lines.

    In hindsight (isn’t it great how hindsight works?), what he was actually trying to explain to me was that our teeth can tell the story of our health.  This is all the more important when it comes to recent research linking dental health with other conditions including alzheimer’s disease.  We’ve all been told how important flossing is, and like many of us, my flossing habit comes and goes.  Dr. Ing stressed the importance of flossing for good gum health, which is important on the list of things we can do to try to stave off alzheimer’s.

    Whenever I speak with Dr. Ing, I learn something.  This time it made me realize how the teeth can tell a story, and how integral teeth and gum health is to our overall health.  I best get out the floss, this time the habit is going to stick.

  • Ep 212 March 2022 Roundup

    Let’s start the blog with the show notes for this Episode –

    Ellen Bayens of theceliacscene.com has given us some great articles to look at this month.  Somehow, she found an article written on the issues of cross contamination in restaurants in Malta.  It’s amazing to see that celiacs in another part of the world with a very diverse cuisine from ours have the same issues ordering food in restaurants.  As well there is an interesting study that was done recently looking at the blood tests done with children and how indicative they are of a final diagnosis of celiac disease.  The aim of this study is to identify a benchmark level for blood tests that would indicate a biopsy for a child is not necessary. 

    We discuss the curious issue of Novak Djokovic, the international tennis star who has publicly said that he is on a gluten free diet for his health.  There is more behind this story, and much of it will leave you with more questions than answers.

    Are you familiar with the FODMAP diet?  Ellen explains the premise of the diet and how it is being used by some celiacs who are struggling to gain remission from their symptoms.  In Episode 93 of this podcast, I interviewed Steven J. Singer, who runs Fody Foods, helping those who are using the diet as a tool towards better health.

    Ellen gives us more information on how you can post questions on Instagram for Selena DeVries @celiac_dietitian.  As well Selena offers a focused Facebook group for those with persistent symptoms, along with courses and assistance on her website www.healthbean.ca.

    Ellen and I go on to speak about food including the Taco Revolution foodtruck, Trumps Foods Hazelnut Torte on Amazon.ca, the Everyday Gluten Free Gourmet online cooking classes and Stella’s Perogies, which my daughter recently found in Ontario at a Metro store.

    Trumps Foods Gluten Free 9″ Chocolate Hazelnut Torte

    NEWS FROM THE CELIAC SCENE

    • Restaurant Cross-Contact Concerns are Common to Celiacs World Wide
    • Standards for Diagnosing Celiac Disease in Children, Without Biopsy, Continue to Evolve!
    • Is Gluten-Free Tennis Superstar Novak Djokovic Undermining our Credibility?
    • Low FODMAP Diet Found to Improve GI Celiac Symptoms in Celiacs

    SELENA’S CORNER

    • Tuesdays Instagram Questions & Answers Session (FREE!)
    • Join Selena’s Symptom Relief Facebook Group


    EVERYDAY GLUTEN FREE GOURMET ZOOM CLASS CALENDAR

    Mar 2 – Thai Curry & Salad Rolls

    Mar 5 – Yeast Bread Series: Soft Dinner Rolls

    March 23: Beautiful Buttermilk Biscuits

    April 2: Yeast Bread Series – Pizza

    April 9: Understanding Gluten Free Flour

    STELLAS GLUTEN FREE PEROGIES

    Sue’s Websites and Social Media

    Podcast https://acanadianceliacpodcast.libsyn.com

    Podcast Blog – https://www.acanadianceliacblog.com

    Email – acdnceliacpodcast@gmail.com

    Celiac Kid Stuff – https://www.celiackidstuff.com

    Baking Website – https://www.suesglutenfreebaking.com

    Instagram – @suesgfbaking

    YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

    Email – sue@suesglutenfreebaking.com

    Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

    My Thoughts

    Sometimes you get to the point where you think you’ve heard it all.  This is never the case with celiac disease, from the variety of symptoms to diagnosis stories, there is always more to learn.  The story Novak Djokovic told about the testing that led him to believe he has a gluten sensitivity is one I’ve heard before, among others.

    When I operated my bakery, I had the privilege of speaking one-on-one with most of my customers.  They wanted to explain their difficulties with gluten free food or the gluten free lifestyle and often wanted to share their diagnosis stories.  I was always willing to listen, in hopes I might be able to offer some advice.  I heard too many stories of stool samples being sent to labs in Texas – after which the patient would receive an extensive list of the foods they cannot eat.  These lists were not limited to gluten, or even lactose, but went on with lists of food additives, vegetables, meats and grains.  The question I got after I was shown one of these lists was – What CAN I eat?  These tests may have a purpose, and for some they may even identify a condition that has slipped through the cracks.  My response was usually that I didn’t know how the results were arrived at, and didn’t have much faith in them.  My attitude was – If a test is valid and useful for medical practitioners it would be available in Canada and not only from a pricey lab (hundreds of dollars) in the US.  You may not agree with me, but seeing the test results without any instructions on what to eat, or follow up to re-test or monitor, didn’t seem like a valid strategy for such a dramatic change in diet.

    Once, on the topic of diagnosis, I was told about the “loaf of bread” test, similar to the one given to the tennis star.  When I appeared sceptical, I was assured by my customer that the person who performed the test, was not legally able to diagnose celiac, so this was the best alternative.  Clearly this was not a qualified medical practitioner, or they could have at least asked the patient’s doctor to request lab work.  My customer thought I would be happy to hear this test wasn’t done by anyone qualified to make a full diagnosis.  To the contrary, I was upset to think that someone could perform (as Ellen called it) a party trick, change someone’s diet for life and not even attempt to get a qualified diagnosis.

    Most women who have had a child remember the “test” that was performed over their pregnant belly with a ring on a string to determine the sex of the baby.  That party trick had a 50/50 chance of being correct, and no one ever took it seriously.  These other “tests” have much less validity, and people pay for the privilege, which makes them want to believe, and often they delay or defer any valid testing for celiac disease – and we all know that doesn’t go well.

  • Ep 211 Food Bullying and the Gluten Free Diet

    Let’s start the blog with the show notes for this Episode –

    The topic of food bullying is a broad one and means different things to different people.  To help me tackle with subject, I invited Nicole Byrom, Registered Dietitian with the Canadian Celiac Association to discuss food bullying in the context of the gluten free diet.  The act of making someone feel bad for the food they are eating often comes from a place of ignorance about celiac disease and non-celiac gluten sensitivity.  Education can be a key factor in your response to a food bully, but issues get more complicated depending on who is the being bullied and who the bully is.  Children often face negative comments on their food when away from home and adults often have negative interactions with family members, or they are seen as being needy and high maintenance.  Nicole is able to put food bullying in perspective with tips and strategies to empower you or your chid.  Nicole gave us her email, Nicole.Byrom@celiac.ca, if you have any suggestions for issues you are facing that the CCA may be able to help with.

    Sue’s Websites and Social Media

    Podcast https://acanadianceliacpodcast.libsyn.com

    Podcast Blog – https://www.acanadianceliacblog.com

    Email – acdnceliacpodcast@gmail.com

    Celiac Kid Stuff – https://www.celiackidstuff.com

    Baking Website – https://www.suesglutenfreebaking.com

    Instagram – @suesgfbaking

    YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

    Email – sue@suesglutenfreebaking.com

    Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

    My Thoughts

    When I started editing the audio files for this podcast, I kept hearing two words – negative and positive.  These are very specific terms, it’s not very often that one person’s negative would be someone else’s positive, as we often hear with trash becoming treasure.  Herein lies our challenge.  The bully, in comments, tone and sometimes deeds is completely negative.  It’s hard work turning the negative experience for someone being bullied into a positive experience for both parties.

    Nicole’s strategies of education and empowerment are a good place to start.  Education involves the victim feeling secure in their knowledge of celiac disease and the gluten free diet, as well as being able to pass on some vital facts to the bully in hopes that they will realize the seriousness with which you must take the diet.

    Empowerment is harder to “learn”.  Most kids get pretty good at it.  Those of us diagnosed later in life often have trouble finding a balance between talking (emphatically) and listening (with sincerity).

    The other thing we touched on near the end of our conversation was just saying “NO”. This sounds simple, but the diverse social, cultural and family situations we often find ourselves in, make saying that little word very had.  For me, like most celiacs, being glutened is painful and can set me back for a couple of days at least.  These episodes give me the strength to stand up to anyone who wants to challenge me, or make me feel bad for eating my special food.  No food is worth the pain, discomfort and longer-term effects on my body.  The bullies don’t realize that, because if they did, they wouldn’t be bullies.  Oh yes, and during my editing, I realized we both used the word “positive” much more than the word “negative” – so there is a way to deal with this.

    Comments Off on Ep 211 Food Bullying and the Gluten Free Diet
  • Ep 210 The Big Gluten Free Pizza Episode

    Let’s start the blog with the show notes for this Episode –

    This episode is a fun and informative conversation with two of my friends about Gluten Free Pizza.  Fortunately, my friends Ellen Bayens (theceliacscene.com) and Cinde Little (everydayglutenfreegourmet.ca) are experts when it comes to ordering pizza in a restaurant and making pizza in your home kitchen.  Ellen gives us some great tips on the questions you need to ask to ensure your gluten free pizza is safe to eat in a restaurant.  As well, she gives us some information you can use to decide if ordering a takeout pizza is safe for you.  Here is the link to Ellen’s list of questions to ask and the Gluten Free Pizza restaurant she spoke about –

    bit.ly/OrderingGlutenFree

    bit.ly/900DegreesPizza

    Cinde and I talk about some of the options available to you if you want to make a gluten free pizza at home.  There are premade pizza crusts, pizza dough and dough mixes.  Although each of these options may be gluten free, the best gluten free pizza crust will likely come after experimenting with different yeast-based crust recipes.  Techniques are very different from wheat pizzas and can often be best learned from a baking class.  Whether you’re baking your pizza in a very hot oven, on a pizza stone or steel, or on an outdoor barbeque, Cinde gives us lots of tips to make your best gluten free pizza.  You may want to join one of Cinde’s baking classes to gain some confidence and set you up for success with gluten free pizza.

    Cinde’s Class Calendar – https://everydayglutenfreegourmet.ca/class-calendar-2/

    Cinde’s Information on Flour Blends – https://everydayglutenfreegourmet.ca/recipe/gluten-free-flour-mix/

    I mentioned my Gluten Free Cauliflower Pizza crust and you can see the video along with the ingredient list at the following link –

    Gluten Free Cauliflower Pizza Recipe

    Step by step instructions to make amazing Gluten Free Cauliflower Pizza Crusts.

    Sue’s Websites and Social Media

    Podcast https://acanadianceliacpodcast.libsyn.com

    Podcast Blog – https://www.acanadianceliacblog.com

    Email – acdnceliacpodcast@gmail.com

    Celiac Kid Stuff – https://www.celiackidstuff.com

    Baking Website – https://www.suesglutenfreebaking.com

    Instagram – @suesgfbaking

    YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

    Email – sue@suesglutenfreebaking.com

    Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

    My Thoughts

    There were a few years when I operated my gluten free bakery that my life revolved around making more gluten free pizzas than you can imagine.  All my pizzas were made by hand, and I had to recruit extra staff to make it all possible.  The job was daunting with orders for hundred of pizzas each week, baked, topped, frozen and boxed.  I did enjoy the process though.

    After the bakery closed, it took me a bit of time to begin enjoying making pizza at home; and even more time to begin experimenting with different recipes.  On Cinde’s suggestion, I recently purchased the book “No Gluten, No Problem Pizza” by Kelli and Peter Bronski.  This book is a deep dive into different types of pizza dough, and techniques, and was written after the couple travelled to Italy and within the US, visiting more then twenty-five pizzerias and eating more than sixty gluten free pizzas.  This is my kind of reading. 

    Currently, I’m working with the New York style dough recipe, using my pizza stones, but I’m anxious for the summer months, when I can switch to the heat of the propane barbeque to see what difference that makes.  I’m happy with the results, and even happier with the challenge of making a variety of crusts that will suit my taste. 

    The thin crust pizza I made at my bakery will always be something I enjoy, but being able to add a healthier cauliflower crust and now a newer method and recipe to make a chewy thicker crust, is a good start on my overall pizza repertoire.  Making pizzas is fun again, eating them is fun too!

  • Ep 209 Discovering Nairn’s Gluten Free

    Let’s start the blog with the show notes for this Episode –

    I had the pleasure of speaking with Maria and Emma about Nairn’s Gluten Free Products imported from Scotland.  Maria is the importer/distributor and Emma is the Brand Manager in the UK.  Maria clarifies the requirements of importing a product and ensuring the packaging and labelling meets Canadian standards.  Emma fills us in on the long history of oats in Scotland, as well as the origins of the Nairn’s bakery.  She details how and why Nairn’s started their gluten free product line, as well as how they source oats and test for gluten.  You can follow Nairn’s on Instagram @nairns_canada, and on Facebook at Nairn’s Oat Crackers Canada.  Recipes can be found on the UK website at nairns.com/recipes.  You can purchase Nairn’s products at some of the large grocery chains in Canada and online at www.well.ca.  More recipe ideas can be found in the CCA 2021 Holiday Survival Guide – download your copy at https://www.celiac.ca/wp-content/uploads/2021/11/2021-CCA-Holiday-Guide.pdf

    Sue’s Websites and Social Media

    Podcast https://acanadianceliacpodcast.libsyn.com

    Podcast Blog – https://www.acanadianceliacblog.com

    Email – acdnceliacpodcast@gmail.com

    Celiac Kid Stuff – https://www.celiackidstuff.com

    Baking Website – https://www.suesglutenfreebaking.com

    Instagram – @suesgfbaking

    YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

    Email – sue@suesglutenfreebaking.com

    Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

    My Thoughts

    I’m always happy to help promote safe gluten free oats in the diets of those with celiac disease or those on a gluten free diet.

    Growing up, I often ate oats, either as oatmeal for breakfast or in a variety of oatmeal cookies, both store-bought and homemade.  I was diagnosed with celiac disease at the end of 1995 and at that time, we were years away from having “gluten free” oats available for those on a gluten free diet.  I was open to trying every new grain or non-grain ingredients I could, that was gluten free – and there were many, but I still missed my oats.

    I remember a CCA conference many years ago when Dr. Vernon Burrows made a presentation telling us that if oats could be grown apart from gluten containing crops, harvested and processed with “free from gluten” equipment, then the oats would be gluten free.  It was quite a concept those many years ago, but all of us who heard the presentation were hopeful, that one day, celiacs would be able to buy and consume safe oats and oat products.

    Of course, we didn’t realize it then, but so much more had to happen to before safe oats were available to the gluten free consumer.  Health Canada regulations and labelling laws had to be changed to recognize this specially grown and prepared oat product, along with education of consumers.  The education part was taken on by the Canadian Celiac Association.  A position statement was issued and added to over the years and is worth reading – https://www.celiac.ca/living-gluten-free/oats-statement/

    My excitement about oats stems mostly from the fact that our oats have the same taste and nutritional value as “regularly processed oats”.  Over many years, much care has been taken to produce different gluten free grains, combining them in blends to allow us to create wonderful baked goods.  Oats, on the other hand are the whole grain – not broken down into starches, or hydrolyzed – available in different forms for different uses (groats, rolled, quick oats and flour).   In my oatmeal cookies, I use oat flour and rolled oats.  Gums and other standard gluten free additives are often not needed when baking with oats as they are a whole grain.  The new Gluten Free Oreo Cookies contain gluten free whole oat flour.  The nutritional breakdown is spectacular – 75 calories, 3g of protein, 2.5g of fibre in only ¼ cup (20g). 

    I use gluten free oats in my baking whenever I can.  I find oats filling, nutritious and satisfying.  Gluten free oats now are more than I could have even dreamed of when I sat in on Dr. Burrows presentation those many years ago.

    Comments Off on Ep 209 Discovering Nairn’s Gluten Free