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Episode 162 March 2021 Roundup
A Conversation with Ellen Bayens
Let’s start the blog with the show notes for this Episode –
It’s the beginning of March and time again to talk with Ellen Bayens of theceliacscene.com to delve into some of the studies and information she has brought us over the past month about celiac disease and the gluten free diet. Ellen and I talk about a new non-invasive patch that might make diagnosis of celiac disease easier and might be a great tool where patients don’t have access to sophisticated medical labs. Also, there is a study Ellen has highlighted done in the UK looking at why the diagnosis of celiac disease is often missed or slowed and what steps could be taken to overcome these issues. The necessity for a gluten challenge to diagnose those who have already started a gluten free diet has long been an issue for our community. Ellen tells us that researchers are working on a test that might allow those already on a gluten free diet to still be properly diagnosed. I was curious to learn from Ellen about one of the directions of research into Covid-19 that might have repercussions for celiac disease. Long-haul Covid-19 patients are showing signs of an autoimmune reaction which the researchers find curious and may lead to more investigation into the triggers for autoimmune conditions including celiac disease. Ellen and I always get around to talking about food and on this episode we discuss an article presented by Schar about wheat starch, which is common in Europe and not well understood in North America.
Microneedle Patch – Non-Invasive Biomarker May be Way of the FutureMedical Inertia to Blame for Delayed / Missed Celiac Disease Diagnoses
Test Could Preclude Gluten Challenge in Some Patients Who Have Already Gone Gluten Free
Something Celiacs Can Relate to: COVID-19 Virus May Prompt Body to Attack Itself
What is Wheat Starch and is it Safe for Celiacs?
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Facebook – @acanadianceliacpodcast
Twitter – CeliacPodcastCA
Email – acdnceliacpodcast@gmail.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
My Thoughts –
I’m glad Ellen has taken on the job of uncovering scientific studies and investigations. It’s not something I would ever tackle. When a particular study that catches my interest has been brought to my attention, often by Ellen, I am sometimes able to track down one of the investigators and interview them for the podcast. I enjoy delving into the information, but not necessarily researching to uncover it.
After I finished my conversation with Ellen I thought about what the diagnosis of celiac disease might look like in 10, 15, or even 20 years from now. My celiac daughter is an adult now, and hopefully one day she will choose to have children. We both will be concerned about whether her children, my grandchildren, will develop celiac disease. They likely will be the lucky ones, as we will be watching for the signs. My other daughter who is not celiac, but knows a great deal about it, will also be watching for the signs. What about other mothers and fathers?
Fortunate are those who get a relatively quick diagnosis because another family member has been diagnosed. There are so many others, that it makes me wonder how the scientific research being done now will affect the way we diagnose celiac disease in the future, and what ramifications that might have for the diagnosis of other genetic related, or autoimmune conditions.
It’s not unreasonable to think that in the future, a visit to a doctor complaining about particular symptoms could leave a patient with a prescription for a series of patches, similar to the delivery systems for birth control, or the continuous measurement of glucose levels. Wearing patches, targeted at the body’s reactions to toxins (by attracting particular anti-bodies) is so new now, but may be the norm in not so many years.
The UK study which looked at the delays in diagnosis of celiac disease may be a thing of the past, if wearing a patch might unlock a diagnosis. It’s easy for foresee celiac disease being on a list of conditions that might be diagnosed this way, and it would be up the doctor to use the patches to confirm or rule out these conditions.
What a world that would be. So many questions – how big would the celiac/gluten free population be? How would that effect our supply and variety of gluten free foods and the availability to eat in restaurants? How many others would be properly diagnosed with other conditions that have jumped the hurdles of diagnosis.
What if the research into long-haul patients of Covid-19 resulted in a discovery of a trigger for celiac disease?
The future of medical science is so bright, even if we just look through the narrow lens of celiac disease. Ellen, you’ve put my brain to work in a good way on the studies you’ve uncovered this month – thanks for that!
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Ep 161 A Child Diagnosis Story
A Conversation with Lisa Rigney
Let’s start the blog with the show notes for this Episode –
We’ve spoken before about some of the differences in the diagnosis of a child as opposed to an adult. On this episode I speak with Lisa Rigney about how her daughter was diagnosed and some of the immediate changes it made to the family dynamic. It’s easy in hindsight to look back and see some symptoms in a child that were clearly missed as the family went about their daily lives. Lisa has recently begun working with the Edmonton Chapter of the CCA and hopes her family’s story will help others on the difficult journey of having a child diagnosed with celiac disease, when neither parent has been diagnosed.
Mother and Daughter Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Facebook – @acanadianceliacpodcast
Twitter – CeliacPodcastCA
Email – acdnceliacpodcast@gmail.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
My Thoughts –
As adults we are very conscious of what is normal and when we need to seek medical assistance. If we’re having more and more urgent bathroom breaks than those around us; if we experience pain from eating that doesn’t seem to effect others; if we get sick more often and don’t get over things like our friends and relatives do – it’s time to seek medical help.
The story is different with children. Many children suffering with the symptoms of celiac disease don’t know any different. They don’t know what it’s like to go through a day without tummy upset. Why would they, they’ve never experienced it.
I remember back to before my diagnosis, and before I knew to have my daughters tested. My oldest was always a whiny child, not fussy, just whiny. She was pleasant in the morning, energetic and enthusiastic. As the day worn on, she became “difficult”, she didn’t want to do anything with the rest of the family, she complained, not about anything in particular, but everything in general. Then, the next morning, she was pleasant and lively again.
I remember she often got ear infections, which required an antibiotic. A couple of the medications didn’t agree with her and caused her to be spending most of her time in the bathroom.
She was also small. Our family is not tall in stature, but she was smaller than any of us.
These are the things I can look back on now, knowing she was diagnosed with celiac disease before her 5th birthday. She was an early talker, and always had lots of words, but she couldn’t tell us that something was wrong, because to her it was normal to feel this way. I, as her parent only thought she was a difficult child, not in the mornings, but as the day went on. I was able to explain away subtle symptoms, that I know now should have raised a bigger red flag.
It wasn’t until I was diagnosed and then had both the girls tested that my oldest came back positive. I didn’t know enough about celiac at the time to put all the pieces together, but now the pieces fit like a puzzle. The celiac diagnosis of a child is rarely straight forward, but it’s a gift. If I hadn’t been diagnosed, I can’t imagine how long she would have gone without having the puzzle pieces connected. I am thankful for my diagnosis, not in small part, because it led to her diagnosis and as time went on, we were both able to get healthy together.
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Ep 160 Family Tip of the Iceberg
A Conversation with Dr. Jenny Jagers
Let’s start the blog with the show notes for this Episode –
Diagnosis stories are always interesting. Some are very short, some take longer, and some standout because of their complexity. On this episode I speak with Dr. Jenny Jagers, who has a doctorate in medicine, but is not a medical doctor. She was able to recount her time before diagnosis, as well as the varied symptoms that led to confusion and a negative test for celiac disease. The real story though occurs after she receives her diagnosis. Jenny is from a very large family and what she did next had a profound effect on so many others. Jenny is now a volunteer with the Calgary Chapter of the CCA and it’s very clear, she is going to continue to make an impact on the lives of so many going forward.
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Facebook – @acanadianceliacpodcast
Twitter – CeliacPodcastCA
Email – acdnceliacpodcast@gmail.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
My Thoughts –
Families come in all shapes, sizes, and temperaments. When one of us gets a diagnosis of celiac disease, we turn to our families to share our “discovery” in hopes that our experience might help them learn more about their genetics and possibly unlock a solution to ongoing health issues.
I’ve always found it curious that many people “don’t want to know” about our diagnosis. They don’t want to think it might be a “family issue” and effect them as well. It can often be an uphill battle to get other family members on board with the possibility that celiac may be the cause of other family health problems.
When I think about this dis-connect, I’m drawn back to the vilification of the gluten free diet. We’ve all heard the “jokes” about gluten free food, and how it’s just an inconvenient choice that makes any meal difficult for everyone. We sometimes want to blame those who do not have celiac disease and choose the diet for other health reasons, for fuelling the idea of self-importance and communal inconvenience. I try never to go down this path.
It does seem the public “bad rap” that has identified the gluten free diet has become a stumbling block for other family members. They can’t get past the inconvenience to see the diet for what it really is – our medicine.
When I think back before my diagnosis to the times I ended up flat out on the floor in my room, after a meal, writhing in pain, ready to do anything that would stop this from happening, gluten free seems so easy.
If only others could embrace the restrictions of the diet to understand that we don’t require expensive, invasive medical procedures, or require life-long medications that mess with our immune system and could have profound side-effects. Embracing the gluten free diet is not easy for those who stand by us and watch us struggle, especially in the early days of a diagnosis, but the big picture is so much more important. Gluten is our enemy. Removing gluten is our medicine. Simple, but not easy.
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Ep 159 Glutened – The Short Film
A Conversation with Producer Hayley Repton
Let’s start the blog with the show notes for this Episode –
This week I’m thrilled to be speaking with Hayley Repton, producer of the short film – “Glutened”. The film is a fast-paced look at a young woman’s rollercoaster journey after diagnosis; how her life changes and how she comes to terms with the many aspects of her new lifestyle. Hayley let us in on some behind the scenes information, along with some of the rational for the many threads she pulls together to weave the story. I admit to Hayley that I cried at the end of the film, and when I’ve re-watched it, my emotions are still so close to the surface. This is an important film to watch, both for the diagnosed and those around them. Hayley has crafted a story that pulls the viewer in and imparts an incredible amount of true-life information in 8 minutes. Thank you, Hayley for this valuable contribution to our community.
You can watch the film “Glutened” on Vimeo at https://vimeo.com/486284734
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Facebook – @acanadianceliacpodcast
Twitter – CeliacPodcastCA
Email – acdnceliacpodcast@gmail.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
My Thoughts –
We forget. Maybe we try to forget the first few months of our diagnosis that required a gluten free diet. Maybe it became a blur for us as we progressed through our knowledge of the diet and lifestyle. Maybe we had other family members that required the diet as well and our focus shifted to them. Whatever the reason, the short film “Glutened” brings everything flooding back.
I often assist people when they are first diagnosed. This started with my involvement in the Canadian Celiac Association and became more pronounced when I opened my gluten free bakery. I was the go-to place for information and support when someone first received their diagnosis. It became a matter of course for me to ask the right questions and direct individuals in label reading, how to handle social situations and towards helpful resources.
How soon we forget. This past year, any guidance I’ve given has been online, omitting the personal touch. Most of us have cocooned in some form or another for almost twelve months now. This is a great strategy to eat gluten free, few restaurant visits, curated food delivery, and minimal if any social events. We could cook and bake for ourselves as most of us had more time on our hands. We felt relatively safe in our small gluten free bubbles.
Watching the film brought back that tentative sense of control. Being home gives us control, but remembering when we were all expected to interact constantly with the rest of the world can make us anxious all over again. Maybe, had I not been in such control for a year now, I wouldn’t have taken the film so personally. On the other hand, I think I needed a jolt, a jolt to my memory of how the diet effects all aspects of our lives, not just our trips to the grocery and then the refrigerator. This film is different from the many (many) videos we consume daily about shopping, preparing and eating gluten free. This film is a journey; one most of us have taken and one many of us are happy to file deep in our brains and not reference often. That’s what makes this film important. The ability of a film maker to stir emotion is powerful and rare. Likely, your friends or family will not feel the same way about watching the film, but it’s still valuable for you to share it.
Hayley has done her job, she’s stirred the emotions of many people and she should be very proud of her work. She told me she’d like to produce more content about the celiac/gluten free journey and I, for one am excited and in total support. Hayley, show me more, I’m open to another good cry.
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Ep 158 February 2021 Roundup
A Conversation with Ellen Bayens of The Celiac Scene
Let’s start the blog with the show notes for this Episode –
It’s early February and time again to welcome Ellen Bayens of theceliacscene.com back to the podcast to discuss some of the news and happenings she has brought us from the celiac and gluten free world. Ellen and I talk about a couple of studies, one to do with universal testing of children for celiac disease and the other is a very small study looking at managing the gluten free diet. We also chat about food blogs, and in particular one from Teresa of Gluten Free KOB, as a compliment to her online baking courses. Gluten Free Oreos have hit the market in Canada which prompts a lively discussion following much controversy over social media regarding package labelling. Recently, I received an email from a woman in England who produced a short film called “Glutened”. It is a must-see for everyone with celiac disease, and for those around them. I will be interviewing the producer for this podcast in the near future. Listen for the interview and you can watch the film at https://vimeo.com/486284734
Study Urges Universal Screening for Celiac Disease in Children
Managing a Gluten-Free Diet Affects All Levels of Society
Introducing KOB Gluten-Free Baking Resource – FREE Printer-Friendly Recipes & Instructional VideosDirect link to the short film “Glutened” – https://vimeo.com/486284734
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Facebook – @acanadianceliacpodcast
Twitter – CeliacPodcastCA
Email – acdnceliacpodcast@gmail.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
My Thoughts –
Gluten Free Oreos – not sure I ever thought I’d be typing that phrase. There are many things I missed when I was first diagnosed. One was oreos, mostly because I enjoyed them with my daughters. Once my oldest was diagnosed at age five, we began searching for her favourite foods in a gluten free version.
I have over the years, been able to make almost anything I missed. I even made a version of gluten free oreos – yumm! Most of the time however, I was quite contented with the KinniTOOS cookies from Kinnikinnick. This does make me think of the many gluten free versions of things that we now have widely available. Who would have imagined gluten free Kraft Dinner (mac & cheese)? We have so many flavours of ice cream, for instance – Chapman’s Cookies & Cream, along with a multitude of cake mixes to rival any gluten selection of the grocery store. Snack foods abound including different flavours and shapes of pretzels, corn chips, a large assortment of puffed food snacks (rice, corn, lentil etc.), many from the big label brands.
We can’t forget about pasta. When I was first diagnosed we had rice pasta, white or brown. I was fine with that as it filled the need. Over time, we have been treated to some amazing pastas made from a variety of ingredients I would never have thought would have worked for the humble pasta dishes I was making. Even the big names like Catelli and Barilla have developed excellent products. Corn, quinoa, chickpea, lentil and multigrain to name a few of the huge variety we find to tempt us.
I’m excited to try the new gluten free Oreos. But I’m more excited when I realize how the gluten free diet has been accommodated and even catered to by some very large food companies with some excellent products. Gone are the days when our food was just edible. These new foods give more hope for the newly diagnosed. The diet is hard, but these innovative products bring it within reach of many more. Good for Us!
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Meeting The Celiac Project Podcast
Let’s start the blog with the show notes for this Episode –
This week I invited Mike and Cam from The Celiac Project Podcast: 2 Guys Talking Gluten Free to join me to tell their diagnosis stories and motivation for starting a podcast about celiac disease. The most noticeable difference from my podcast to theirs is that Mike and Cam are men, and in my case, most of my celiac friends are woman, so hearing their stories and perspective was very interesting. Mike started the podcast after producing the film “The Celiac Project”. You can find out more about the film on his website – https://www.celiacproject.com/
You can listen to their podcast wherever you listen to podcasts or at https://celiacprojectpodcast.libsyn.com/
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Facebook – @acanadianceliacpodcast
Twitter – CeliacPodcastCA
Email – acdnceliacpodcast@gmail.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
My Thoughts –
Talking to Mike and Cam got me thinking about when I was first formulating my plans for this podcast. I went back to school a few years ago and discovered podcasts on my long drives to and from. I was excited to see how many different subjects and interests were being covered. I also realized the freedom it gave to the content creators. I had worked with a tv producer to make two seasons of my baking show and was beginning to understand the constraints of tv – the segments had to be a certain number of minutes, I had to be careful to reference brand names only when it was necessary, and greatest of all, it took a handful of talented people to make 23 minutes of television.
Podcasts are different. They can run any length. They can be produced to any level the creator feels comfortable. They can be on any subject and are only constrained by the creator’s knowledge and imagination. Podcasts can utilize different formats – interview, sole chat, group chat, storyline, serial, and the list goes on. Podcasts, for the most part aren’t in seasons, and can be stand alone, or consecutive.
These freedoms appealed to me. I wondered if I could do it all myself. The first thing I did was decide I wanted to talk about celiac disease and the gluten free diet, and interview others in the field. Next, I called Melissa at the Canadian Celiac Association to see how my efforts mighthelp to get their message out. They were happy to be supportive of the podcast, and Melissa was my first guest.
The differences from my story those of Mike and Cam, can be put down to my involvement with the CCA. I wanted to make a new form of media to compliment what the CCA was doing. Mike and Cam, although their starting point was the film The Celiac Project, they branched out to whatever suited the format of “2 Guys Talking Gluten Free”. Our styles are different, our perspectives are different, but I’m sure some of our audience is in common.
I will become a regular listener to their podcast, and I’m sure our paths with cross again, and we’ll learn from each other. Best thing is, I now know two more guys who are celiac.
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Ep 156 Selena is Here to Help
A conversation with Selena Devries RD
Let’s start the blog with the show notes for this Episode –
I’m joined again on the podcast by Selena Devries, a Registered Dietician specializing in gut issues, as well, she is also celiac. Selena has developed a comprehensive course for anyone with persistent gut issues after their celiac diagnosis. This course is very indepth and Selena will be working closely with course participants on an individual basis. The course begins in late January, but before that, a shorter course is available to anyone who might be interested, but not sure if it’s right for them.
http://www.selenard.com/ where you can sign up for Selena’s newsletter and other resources
Instagram celiac_made_simple
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Facebook – @acanadianceliacpodcast
Twitter – CeliacPodcastCA
Email – acdnceliacpodcast@gmail.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
My Thoughts –
Many people have pivoted from in person classes and consultations to virtual ones over the past year. It was a necessity for most, not just for the providers, but also for the consumers of these sessions.
I think the most unique utilization of this technology is the virtual cooking or baking class. There are a few talented cooks and bakers that have used their skills in this way. I can see the benefits of these online classes far after covid is a factor in our day to day lives.
On the other hand, Selena had provided virtual dietician appointments before the pandemic turned our lives upside down. Now she’s taking her expertise to another level with videos and structured classes. Many of us will meet with a couple of dieticians in our celiac journey, but very few of us will have a consultation with a dietician who is an expert in gastric issues, as well as being celiac herself.
We are fortunate to have Selena to help us, and with her classes, she is accessible to anyone from coast to coast to coast. That is remarkable. I know many people are accessing their family doctors and specialists via zoom meetings these days, for appointments, and now you can have a specialist dietician “partner” teaching and giving you individual advice as well.
Covid-19 has dealt the world an awful blow, but there are a few things, developed by ingenious people, that I hope remain after life goes back to normal. You may remember, as I do, the science-fiction tv shows when I was a kid, showing a patient with a doctor who had some fantastical handheld gadgets that gave readings and the doctor could reference some faraway expert for the diagnosis. That does appear to be our future, and in some ways our present. I intend to embrace the new ways of doing things and help promote those who are forging new paths.
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Ep 155 Sue Reflects on 2020
A Look Back on the Podcast for 2020
Let’s start the blog with the show notes for this Episode –
This episode is one of my rare solo episodes. I felt it was important to look back on 2020 and examine how the events of 2020 effected the topics covered and listenership of the podcast. None of us could have predicted how the corona virus pandemic would change everything in our lives, or how long the upheaval would go on for.
It was somewhat therapeutic for me to look back at all the topics covered and guests welcomed on the podcast. I am able to mention some of the important shows, along with some of my favourite conversations, as well as how the episodes rated among my listeners.
You can find a list of all my podcasts along with show notes and a player at –
acanadianceliacpodcast.libsyn.com
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Facebook – @acanadianceliacpodcast
Twitter – CeliacPodcastCA
Email – acdnceliacpodcast@gmail.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
My Thoughts –
This will be short and sweet, as I have already shared my thoughts on a year of podcasts.
The only thing I have left to say is how privileged I feel to be able to produce this podcast for a very special audience. Before starting the podcast, I read pros and cons about targeting a podcast to a relatively small niche of people – those who are celiac and gluten free. A friend of mine who has long been involved with social media is still trying to get me to remove “Canadian” from the podcast title, as this further narrows my niche. I am not deterred. I am a part of that niche, and every week I strive to provide information and guests that I find interesting. So far, it seems to be what you want to hear as well. I’ve made some great friends through my podcast, especially Ellen Bayens (of theceliacscene.com), who I speak with every month. This work is a great way to keep things current, keep me thinking and continuing to contribute. None of this matters without you taking the time to listen.
Thanks for Listening!
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Ep 154 January 2021 Roundup
A Conversation with Ellen Bayens
Let’s start the blog with the show notes for this Episode –
On this episode I speak with Ellen Bayens of theceliacscene.com who brings us up to date on what’s in the news regarding celiac disease and the gluten free diet. December is normally a quiet month when it comes to releasing new medical information from studies, and this December was no different. We speak about a study that considers reducing the requirement for a biopsy to diagnose celiac disease. Ellen also fills us in on the safety of the Pfizer Covid19 Vaccine. As well Ellen and I talk about some new resources available to celiacs, not only the newly diagnosed, but for those of us who have been following a gluten free diet for many years. During 2020 many gluten free businesses were faced with difficult decisions – continuing to struggle, or changing their business model. Each gluten free business/service is unique and Ellen and I talk about how some are meeting this challenge. You can find more information about our topics at –
Bye Bye Biopsy for Adults with Celiac Serology 10 Times Higher Than Normal
Is Pfizer’s COVID19 Vaccine Safe for Celiacs?
HEALTHY ME – A Gluten Free Lifestyle Course
Gluten-Free Businesses Diversifying Due To Covid / Reinventing Themselves.
The Art of Slow Food Opens 100% GF Wood-Fired Pizza Food Truck!
Introducing El Faro Gluten Free Flour IXIM Tortillas, Seasonings, Salsas & More, Made by Taco Revolution Food Truck
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Facebook – @acanadianceliacpodcast
Twitter – CeliacPodcastCA
Email – acdnceliacpodcast@gmail.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
My Thoughts –
I enjoy speaking with Ellen every month, it keeps me on top of current celiac/gluten free news and topics. That’s one of the reasons I started the podcast. It’s now been almost three years since my first podcast debuted at the end of January 2018. So much has happened for me since that time. I have attended many different celiac/gluten free events, met lots of experts, both in the medical field as well as entrepreneurs and others with a story.
It’s quite a job to look back on all of my podcasts, over 150 now, so many guests, so many topics. What I have attempted to do in the past, and will again this year, is look over my podcasts for this past year and talk about what I’ve learned. Ellen eluded to my plans in this week’s episode. You should know I look back with mixed feelings. Some episodes were crammed with medical information, and I was often on the edge of not understanding, but hopefully, I was able to present this information in a way as to bring some degree of understanding to the topic. Other episodes were conversations with entrepreneurs in the gluten free space. These episodes varied quite a bit. I tried to relate my own gluten free bakery experience to these businesses, I usually left with a great respect for what these people were trying to accomplish.
Some of my favourite episodes talked about how the gluten free diet has changed people’s lives. From a medical perspective, the gluten free diet is our only “cure”, but I was more interested in how people re-arranged their diet, culture, needs, wants and family life to accommodate gluten free. Of particular interest were individuals who came from a different cultural background from me – Italian, East Indian, Polish etc. I’d like to do more of this series. If you are, or know of someone who would like to discuss gluten free and how you’ve adapted your/their culture to meet it’s challenges, please contact me (acdnceliacpodcast@gmail.com).
When I look back on the past three years, I can see I’ve grown as a celiac. My knowledge, my contacts, my experiences and my confidence have all grown. I feel richer for having done the work to produce the podcast. I can only hope you feel something positive for listening.
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Ep 153 Controversial Gluten Contamination Studies
A Conversation with Dr. Jocelyn Silvester & Ellen Bayens
Let’s start the blog with the show notes for this Episode –
I recently spoke with Dr. Jocelyn Silvester for Episode 149 of the podcast regarding the “Doggie Bag” Study which looked at the actual amounts of gluten that were contained in our seemingly gluten free diet. Dr. Silvester has gone on to look at some of the everyday ways we handle our food to identify, then quantify the risks of contamination from gluten containing ingredients. Her experiments included cooking gluten free pasta, sharing a knife with gluten foods, and using a toaster along with risks for children in the classroom. The results of her studies are surprising and somewhat concerning. The Canadian Celiac Association has looked at these findings and believes that more research needs to be done on this topic. No one is ready to change the recommendations for handling gluten free foods to avoid contamination with gluten, but these studies do give us pause to think. I was concerned about the interpretation of these results and decided to invite Ellen Bayens of theceliacscene.com onto the podcast to discuss how some of this information can relate to our day to day lives. Ellen was able to help me put the study findings into perspective.
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Facebook – @acanadianceliacpodcast
Twitter – CeliacPodcastCA
Email – acdnceliacpodcast@gmail.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
My Thoughts –
I’m sure it’s obvious listening to the podcast that I was uncomfortable talking about deliberately going against my gluten free food rules. After Dr. Silvester sent me the study documents, I printed them off, found a quiet place to sit and began reading. I remember I started to squirm, and my breathing became shallow, I was becoming anxious.
Many things in our lives are grey areas, areas where we apply our judgement. As we mature, our judgement, hopefully, gets better. The gluten free diet requires little judgement. It’s very black and white. If there is risk of gluten in a food, I don’t eat it. It’s simple and it’s the way I’ve lived for twenty-five years now.
It’s hard to have an open mind to science when it up-ends your tried and tested “rules”. Hence, my anxiety. I’ve spent a great deal of time thinking about how to deal with Dr. Silvester’s findings. Likely, I’m taking this matter seriously because I often meet with the newly diagnosed to help them start their gluten free journey. Does this change anything, how do I answer, when confronted with these study results? The answer is in the study results.
Now that I’m familiar with Dr. Silvester’s findings and have talked through their implications with Ellen, I can confidently discuss the topic with anyone who challenges me with the science presented here. These studies measured risk, not safety. Every day, we measure risk in all sorts of ways – should we wear boots with heels to walk outside on an icy day? No, we should wear boots with treads. Should we rely on one knife, or one pot of water to keep our food safe? No, but just as with the boots with heels, if we’re careful, we might be fine, not particularly safe, but maybe fine. Ellen had a good point when she talked about the social side of eating a strict gluten free diet, hopefully these studies will help you balance your risk, with your “mature” judgement, and you’ll be fine.