A Canadian Celiac Blog

It’s the beginning of September, and I’m fortunate to have my monthly discussion with Ellen Bayens of theceliacscene.com to chat about the articles and happenings she has brought to our attention over the past month.

First, I have Ellen explain to me the very impactful discovery that was made at McMaster University in co-operation with other colleagues regarding the “spark” that sets off the gluten reaction.

Ellen tackles the “gluten friendly” meal descriptions we’re seeing on menus and looks at what can be done to clarify this situation.

We talk about bloating even on a gluten free diet, a topic Selena DeVries RD raised on Instagram.

Food trucks are making their mark in our cities, but Gluten Free Food Trucks can be life-changing for those of us uncomfortable attending large public events. Ellen breaks down the gluten free food truck craze on Vancouver Island.

My August has been dominated by Camp Celiac and I take some time to talk about our sponsors and how their donations made a huge difference to enhance the camp for everyone.

Here’s the links –

CELIAC SCENE NEWS

McMaster Research Team Discovers Celiac Disease Trigger
What You Can Do if a Restaurant Says Gluten-Free but NOT Celiac Safe
Famished Foodie’s August Gluten-Free Food Truck Video Tour

SELENA RD, INSTAGRAM CORNER

How to Fix Constipation & Bloat
Work with Selena

GLUTEN-FREE RECIPES

Corn Thins Recipe Ideas – Instagram Inspiration!

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

On this podcast I speak with Registered Dietitian Nicole Byrom regarding what happens within a family once a child receives a diagnosis of Celiac Disease. We all want our kids to live healthy, fulfilling lives and throwing celiac disease into the mix just gives us more challenges.

Nicole mentioned a couple of resources she developed with Celiac Canada –

Presentation on Iron Deficiency https://www.youtube.com/watch?v=RJoQ1zEy80o

My Shared Kitchen https://www.youtube.com/watch?v=BatYlJTkjgU

You can also find out more about how Nicole may be able to assist you and your family on your celiac journey at https://freshstartnutrition.ca/

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

I’m grateful that Ellen keeps such good tabs on all the celiac and gluten free news as it comes out. She is the first person I go to if I hear of something new and she’s usually already on top of it. As well she is able to vet the articles that come across her desk and give us the information we not only need, but want. This month a great deal focussed on the affordability of the gluten free diet. This is something Celiac Canada is taking very seriously and are working with the whomever will listen in an effort to stem this tide, which is clearly hitting everyone, but it appears is hitting us harder.

Ellen and I also spoke about travelling gluten free and she mentioned a cruising website – celiaccruise.com

Here’s links for the other subjects we discussed –

CELIAC SCENE NEWS

Rising Food Costs Continue to Concern Celiacs
Colorado Study Supports Universal Screening for Celiac Disease in Children
Navigating Japan with Celiac Disease: Safe Food
Could You Host an International Student with Celiac Disease?
Cruising with Celiac Disease: A Journey of Culinary Comfort

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

I have Cindi the EverydayGlutenFreeGourmet back with me on the podcast to discuss a list she recently published that caught my eye called “29 Tips for Cooking with Gluten Free Flour”. The tips span a range for using gluten free flours in many baked goods as well as in recipes for cooking meals.

You can download the list yourself by going to her website everydayglutenfreegourmet.ca.

You can also find Cindi’s Gluten Free Flour Conversion Chart from her website at everydayglutenfreegourmet.ca/gluten-free-flour-conversion-chart/

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

It’s the beginning of July, so I have the pleasure of talking with Ellen Bayens of theceliacscene.com to chat about interesting articles she has brought to our attention over the past month.

We talk about a uniquely helpful Facebook group for celiac families –

https://www.facebook.com/groups/CeliacParents/. This group was started by Ellen and has been helping families for ten years. If yours is a celiac family, this would be a great resource to check out.

We also spoke about the Conquer Study and how families with celiac children can get involved. Here’s a link https://redcap.ualberta.ca/surveys/?s=4FF8WHPN7447XNFM

You might also want to find out more about the resource that is Selena DeVries RD @ celiac_dietitian on Instagram.

Ellen mentioned world traveller Mark Johnson – you can find him on Facebook at  https://www.facebook.com/celiacexplorer/

CELIAC SCENE NEWS

Celiac Parents & Parents of Celiac Facebook Group Celebrates 10 Years
Conquer Celiac Seeking Childen & Caregivers to Interview

SELENA RD, INSTAGRAM CORNER

We can’t guarantee there won’t be any cross contamination …
How to order a Diary Queen Blizzard
Top 3 mistakes celiacs make when eating out
Paper straws & gluten
Gluten-free claims on oat beverages
Celiac disease – impact on mental health
Eating a strict gluten-free diet but still feeling bloated?
Celiac Dietitian at Your Finger Tips – Tuesday Q & A
Work with Selena

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

On this episode of the podcast, I’m catching up with Kelsea. We spoke previously on Episode 299. I’m a celiac mom, like Kelsea, but my daughter is now an adult, so we have different perspectives on how celiac disease is dealt with for a young child. Many things have changed, but also many things have stayed the same. Not least of which is the panic that sets in when your whole world changes with the diagnosis of a child. Kelsea walks us through how she handles some specific situations and the part that label reading plays as her son gets older.

Both Kelsea and I relied heavily on the information from Celiac Canada as it was more reliable than random posts online. You can find out more at www.celiac.ca.

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

It’s the end of May and I have another opportunity to chat with Ellen Bayens of theceliacscene.com to go over some of the articles and information Ellen has brought to us over the past month.

Ellen published an article about a young woman who posted online about a family situation in which she felt her needs to be on a gluten free diet were not being properly considered by other members of her family. Normally, we would side with the person who has special needs, but by reading more about the circumstances, both Ellen and I found fault in the attitude of the woman eating gluten free. You can read more in the link below.

We all know there are other medical conditions that those of us with celiac disease are more likely than the general population to have or suffer with. Ellen brings three such conditions that we should at the very least be aware of. Knowledge is power!

I mentioned again the recent podcast I produced with Avery about her mentorship program. You can find out more at celiacchat.org.

Both Ellen and I are big fans of Celiac Canada and we felt at the end of Celiac Awareness Month, it was time to suggest that listeners connect with the local Chapter that is closest to them. You can find out more at celiac.ca/living-gluten-free/peer-support/.

CELIAC SCENE NEWS

‘You’re an adult … no one has to accommodate you.’
US Study: Celiacs at Greater Risk of Developing Eosinophilic Esophagitis
Connect with Celiac BC
Peripheral Neuropathy & Celiac Disease | Symptoms & Gluten-Free Diet
Can Celiac Disease Lead to Fatty Liver Disease?
Country Grocer Addresses Food Insecurity for Celiacs
Victoria’s First #ShineALightOnCeliac Light Up!
Thank you to 10,000 Facebook Followers!

PODCASTS

Gluten-Free Living with Ellen Bayens, The Celiac Scene | Voice 4 Chefs Podcast
Avery of Celiac Chat | A Canadian Celiac Podcast
May 2024 News Round Up | A Canadian Celiac Podcast

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

I often get emails from people I know within the celiac community regarding interesting people or medical professionals, who might make good guests for a podcast episode. It was during a conversation with Ellen Bayens of theceliacscene.com when Avery’s name came up. Ellen brought her to our attention recently. When I contacted Avery to record a conversation, we had to wait until she’d finished her final exams – that was a new one for me – and I was excited to hear her story and get the perspective of a high school student on dealing with celiac disease.

Avery had the idea of doing something to benefit the kids in our celiac community, but it took her years to formulate what that would look like. She has recently launched Celiac Chat which is an online mentoring platform to allow kids to speak to other kids, or adults who relate to their issues.

You can find out more, or fill in an application to be a mentee or a mentor at –

celiacchat.org

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

After taking some time off to recuperate from knee surgery, I’m back speaking with Ellen Bayens of theceliacscene.com for the beginning of May to review some of the articles she brought to our attention over the past month.

If you’re interested in the Irish Tour, best make your inquiry quickly, as spots are limited – check out the link below.

Ellen and I spoke about an article written by a reporter in upstate New York regarding his experience eating gluten free in local restaurants. I found he was able to thread together a story that many of us can relate to – but he was able to articulate it so much better than I can.

Ellen shared with us the story of a home-based bakery on Vancouver Island with a difference. She also shares some great photos of his creations. Staying on the food theme, Ellen has provided us a link to a free recipe booklet from Corn Thins – I didn’t realize they were so versatile!

CELIAC SCENE NEWS

• Take a Gluten-Free Tour of the Emerald Isle
• Reporter Navigates the World of Gluten-Free Dining
• Be Amazed by the Story Behind Nathan’s Gluten-Free Bakery
• Corn Thin-Spiration Gluten-Free Recipe Resource

SELENA RD, INSTAGRAM CORNER – celiac_dietitian

• Celiac Dietitian at Your Finger Tips – Tuesday Q & A
• How to Manage a ‘Shared’ Household
• Work with Selena

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

It’s the beginning of April, which for me means that I get to chat with my friend Ellen Bayens of theceliacscene.com about interesting articles and studies she has brought to our attention over the past month. I had to record with Ellen prior to end of the March as I was preparing for knee surgery. Ellen kept posting and you can keep up with her work by subscribing to her monthly newsletter through her website.

Ellen and I both had copies of the recent booklet produced by Celiac Canada with the preliminary results from their recent survey. There is so much information in these numbers and the analysts have only scratched the surface. You can read these initial results or download the booklet at celiac.ca.

Both Ellen and I felt my recent conversation with Linda Sills regarding retirement and long-term care for her celiac mother was concerning and something we should all be concerned about for our families and ourselves. Ellen mentioned a previous a podcast I recorded with Mike Rose about choosing safe retirement living – you can listen at – https://acanadianceliacpodcast.libsyn.com/ep-168-retirement-living-gluten-free. As well Ellen wrote an article about Mike which you can read here – https://theceliacscene.com/celiac-crusader-tackles-challenges-residential-living/

Ellen told us about a new online mentoring program for kids and teens that is being started – you can find out more here – Introducing Celiac Chat – An Online Mentorship Program for Kid & Teens  and hopefully I will speak with Avery for a podcast in the near future.

Villous atrophy is a term that many of us know from our diagnosis, but Ellen was able to show me an article that listed other conditions that may cause villous atrophy – and here I was thinking it was unique to Celiac Disease. Other Conditions that May Cause Villous Atrophy 

On a social media note Ellen told us of a situation at a local restaurant in Victoria that recently decided to remove a popular gluten free item from their menu. This was of course unfortunate, but the negative comments on social media that ensued were somewhat over-the-top. Ellen and I comment on the issues.

I mention that I recently attended a virtual class from Cinde, the everydayglutenfreegourmet.ca. I highly recommend these classes as we can all learn to make more gluten free options.

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com