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Ep 306 July 2024 Roundup
It’s the beginning of July, so I have the pleasure of talking with Ellen Bayens of theceliacscene.com to chat about interesting articles she has brought to our attention over the past month.
We talk about a uniquely helpful Facebook group for celiac families –
https://www.facebook.com/groups/CeliacParents/. This group was started by Ellen and has been helping families for ten years. If yours is a celiac family, this would be a great resource to check out.
We also spoke about the Conquer Study and how families with celiac children can get involved. Here’s a link https://redcap.ualberta.ca/surveys/?s=4FF8WHPN7447XNFM
You might also want to find out more about the resource that is Selena DeVries RD @ celiac_dietitian on Instagram.
Ellen mentioned world traveller Mark Johnson – you can find him on Facebook at https://www.facebook.com/celiacexplorer/
Celiac Parents & Parents of Celiac Facebook Group Celebrates 10 Years
Conquer Celiac Seeking Childen & Caregivers to InterviewWe can’t guarantee there won’t be any cross contamination …
How to order a Diary Queen Blizzard
Top 3 mistakes celiacs make when eating out
Paper straws & gluten
Gluten-free claims on oat beverages
Celiac disease – impact on mental health
Eating a strict gluten-free diet but still feeling bloated?
Celiac Dietitian at Your Finger Tips – Tuesday Q & A
Work with SelenaSue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
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Ep 305 Celiac Mom Kelsea
On this episode of the podcast, I’m catching up with Kelsea. We spoke previously on Episode 299. I’m a celiac mom, like Kelsea, but my daughter is now an adult, so we have different perspectives on how celiac disease is dealt with for a young child. Many things have changed, but also many things have stayed the same. Not least of which is the panic that sets in when your whole world changes with the diagnosis of a child. Kelsea walks us through how she handles some specific situations and the part that label reading plays as her son gets older.
Both Kelsea and I relied heavily on the information from Celiac Canada as it was more reliable than random posts online. You can find out more at www.celiac.ca.
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
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June 2024 Roundup
It’s the end of May and I have another opportunity to chat with Ellen Bayens of theceliacscene.com to go over some of the articles and information Ellen has brought to us over the past month.
Ellen published an article about a young woman who posted online about a family situation in which she felt her needs to be on a gluten free diet were not being properly considered by other members of her family. Normally, we would side with the person who has special needs, but by reading more about the circumstances, both Ellen and I found fault in the attitude of the woman eating gluten free. You can read more in the link below.
We all know there are other medical conditions that those of us with celiac disease are more likely than the general population to have or suffer with. Ellen brings three such conditions that we should at the very least be aware of. Knowledge is power!
I mentioned again the recent podcast I produced with Avery about her mentorship program. You can find out more at celiacchat.org.
Both Ellen and I are big fans of Celiac Canada and we felt at the end of Celiac Awareness Month, it was time to suggest that listeners connect with the local Chapter that is closest to them. You can find out more at celiac.ca/living-gluten-free/peer-support/.
‘You’re an adult … no one has to accommodate you.’
US Study: Celiacs at Greater Risk of Developing Eosinophilic Esophagitis
Connect with Celiac BC
Peripheral Neuropathy & Celiac Disease | Symptoms & Gluten-Free Diet
Can Celiac Disease Lead to Fatty Liver Disease?
Country Grocer Addresses Food Insecurity for Celiacs
Victoria’s First #ShineALightOnCeliac Light Up!
Thank you to 10,000 Facebook Followers!PODCASTS
Gluten-Free Living with Ellen Bayens, The Celiac Scene | Voice 4 Chefs Podcast
Avery of Celiac Chat | A Canadian Celiac Podcast
May 2024 News Round Up | A Canadian Celiac PodcastSue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
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Ep 303 Celiac Chat with Avery
I often get emails from people I know within the celiac community regarding interesting people or medical professionals, who might make good guests for a podcast episode. It was during a conversation with Ellen Bayens of theceliacscene.com when Avery’s name came up. Ellen brought her to our attention recently. When I contacted Avery to record a conversation, we had to wait until she’d finished her final exams – that was a new one for me – and I was excited to hear her story and get the perspective of a high school student on dealing with celiac disease.
Avery had the idea of doing something to benefit the kids in our celiac community, but it took her years to formulate what that would look like. She has recently launched Celiac Chat which is an online mentoring platform to allow kids to speak to other kids, or adults who relate to their issues.
You can find out more, or fill in an application to be a mentee or a mentor at –
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
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May 2024 Roundup
After taking some time off to recuperate from knee surgery, I’m back speaking with Ellen Bayens of theceliacscene.com for the beginning of May to review some of the articles she brought to our attention over the past month.
If you’re interested in the Irish Tour, best make your inquiry quickly, as spots are limited – check out the link below.
Ellen and I spoke about an article written by a reporter in upstate New York regarding his experience eating gluten free in local restaurants. I found he was able to thread together a story that many of us can relate to – but he was able to articulate it so much better than I can.
Ellen shared with us the story of a home-based bakery on Vancouver Island with a difference. She also shares some great photos of his creations. Staying on the food theme, Ellen has provided us a link to a free recipe booklet from Corn Thins – I didn’t realize they were so versatile!
• Take a Gluten-Free Tour of the Emerald Isle
• Reporter Navigates the World of Gluten-Free Dining
• Be Amazed by the Story Behind Nathan’s Gluten-Free Bakery
• Corn Thin-Spiration Gluten-Free Recipe ResourceSELENA RD, INSTAGRAM CORNER – celiac_dietitian
• Celiac Dietitian at Your Finger Tips – Tuesday Q & A
• How to Manage a ‘Shared’ Household
• Work with SelenaSue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
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Ep 301 April 2024 Roundup
It’s the beginning of April, which for me means that I get to chat with my friend Ellen Bayens of theceliacscene.com about interesting articles and studies she has brought to our attention over the past month. I had to record with Ellen prior to end of the March as I was preparing for knee surgery. Ellen kept posting and you can keep up with her work by subscribing to her monthly newsletter through her website.
Ellen and I both had copies of the recent booklet produced by Celiac Canada with the preliminary results from their recent survey. There is so much information in these numbers and the analysts have only scratched the surface. You can read these initial results or download the booklet at celiac.ca.
Both Ellen and I felt my recent conversation with Linda Sills regarding retirement and long-term care for her celiac mother was concerning and something we should all be concerned about for our families and ourselves. Ellen mentioned a previous a podcast I recorded with Mike Rose about choosing safe retirement living – you can listen at – https://acanadianceliacpodcast.libsyn.com/ep-168-retirement-living-gluten-free. As well Ellen wrote an article about Mike which you can read here – https://theceliacscene.com/celiac-crusader-tackles-challenges-residential-living/
Ellen told us about a new online mentoring program for kids and teens that is being started – you can find out more here – Introducing Celiac Chat – An Online Mentorship Program for Kid & Teens and hopefully I will speak with Avery for a podcast in the near future.
Villous atrophy is a term that many of us know from our diagnosis, but Ellen was able to show me an article that listed other conditions that may cause villous atrophy – and here I was thinking it was unique to Celiac Disease. Other Conditions that May Cause Villous Atrophy
On a social media note Ellen told us of a situation at a local restaurant in Victoria that recently decided to remove a popular gluten free item from their menu. This was of course unfortunate, but the negative comments on social media that ensued were somewhat over-the-top. Ellen and I comment on the issues.
I mention that I recently attended a virtual class from Cinde, the everydayglutenfreegourmet.ca. I highly recommend these classes as we can all learn to make more gluten free options.
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
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Ep 300 More from the State of Celiac
This episode is a follow up to Episode 298 when I attended an event called The State of Celiac Disease in Canada during the last week of February. Celiac Canada held the event to present the preliminary results of the recent national survey.
During the event, Melissa Secord the Executive Director of Celiac Canada spoke. I had more questions for Melissa, so I invited her on to this episode of the Podcast. Now that the preliminary results of the survey were being evaluated, I wanted to know more about what the results meant to Celiac Canada, and how they were going to use what they were learning to advance their efforts on our behalf.
Also, at the event in February, a woman by the name of Linda Sills took to the podium to tell her family’s story of dealing with care homes for her elderly mother. Linda gave an emotional talk, and again, there was more I wanted to know. The prospect of choosing a long-term care home for a loved one or yourself, is daunting, but unfortunately, for many of us, it’s a fact of life. I was grateful that Linda trusted me with her moving story and allowed me to dig a bit deeper into how and why. This was a powerful conversation, and one you may want to refer for others to listen to. Thanks Linda, for sharing in such a personal way.
You can download the survey presentation booklet and view some of the highlights on Celiac Canada’s website at –
You can also watch The State of Celiac Disease in Canada presentation that was live on YouTube at – https://www.youtube.com/watch?v=I__T36eeNd8&ab_channel=CeliacCanada
Celiac Canada has an extensive library of videos and presentations on YouTube that answer many of the questions you might have about celiac disease and the gluten free diet – and don’t forget to subscribe to the channel while you’re there.
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
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Ep 299 A Child’s Diagnosis
I recently realized that although many of the people I speak with have been involved in the celiac and gluten free community for many years, I wasn’t well acquainted with the families of the newly diagnosed. When I operated my bakery, I was often the first celiac that people met after their diagnosis – it appears doctors were sending them my way. Since closing the bakery, I’ve built on my knowledge, but I must admit, I need a new perspective on what it’s like to raise a celiac child today.
Ellen Bayens (theceliacscene.com) was kind enough to introduce me to Kelsea. She is a mom of a busy 10-year-old boy and can clearly remember what life was like before, during and after the diagnosis. Our conversation centres around the diagnosis and how the entire family was affected. I hope to have Kelsea on again to explore more aspects of being a parent to a celiac child. Hopefully, I’ll speak with her son at some point as well.
Sue’s Websites and Social Media
Podcast https://glutenfreeweighin.libsyn.com
Canadian Celiac Podcast Blog – https://www.acanadianceliacblog.com
Instagram – @glutenfreeweighin
Email – GlutenFreeWeighIn@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Other Podcast – A Canadian Celiac Podcast – https://acanadianceliacpodcast.libsyn.com
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Ep 298 State of Celiac in Canada I
During the last week of February, Celiac Canada held an event called The State of Celiac Disease in Canada, during which the preliminary results of the recent national survey were presented. I was invited to bring my podcast equipment to the event and record conversations with some of those involved. This episode was recorded at the event, so you will notice some distortion and background noise in the audio – there was lots going on.
I had the pleasure of speaking with James King. James has been a guest on the podcast previously, but this conversation was all about survey results. James is an analyst who is able to make sense of the numbers. He shares some of his insights into survey results with us. I also spoke to Registered Dietician Caleigh McAulay from Celiac Canada about her role in the formulation of the survey and how the results might help her help us.
You can download the survey presentation booklet and view some of the highlights on Celiac Canada’s website at –
You can also watch The State of Celiac Disease in Canada presentation that was live on YouTube at –
Celiac Canada has an extensive library of videos and presentations on YouTube that answer many of the questions you might have about celiac disease and the gluten free diet – and don’t forget to subscribe to the channel while you’re there.
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
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Ep 297 March 2024 Roundup
It’s time to catch up with Ellen Bayens of theceliacscene.com for the beginning of March 2024. I have the opportunity to review some of the articles Ellen has brought to our attention over the past month and ask questions as well as interject my own thoughts.
We talk about a line of granola snacks and breakfast s foods that recently had their “gluten free” designation removed because the manufacturer is no longer using gluten free oat products. As consumers we must accept this as a business decision, but the concern of both Ellen and I was the lack of awareness with consumers of this big change in ingredients.
Ellen brings to our attention a couple of food recalls by Health Canada of foods containing undeclared gluten. You can sign up to receive these alerts and specify which ingredients you are concerned about on the recalls and alert page – https://recalls-rappels.canada.ca/en
Ellen includes an interesting article about a young professional hockey player and his journey with celiac disease.
Of a more concerning nature is the article about a very specific form of cancer which is more common in celiacs and is on the rise. We discuss some of the statistics and if you should be concerned yourself.
• PRANA Organic Withdraws Gluten-Free Certification from 2 Breakfast Product Lines
• Celiac Hockey Players Makes Reference to Pucks
• Concerning News for Celiacs – Cases of Digestive Cancer Increasing
• Indian Heritage Brand ‘Soya Chaap’ Recalled due to Undeclared Gluten
• Delizia Vegetarian Beef Balls Recalled due to Undeclared Gluten• New Chapter for Kinnikinnick Foods
• Fibre Ideas from Everyday Gluten Free Gourmet
• ‘Eating Windows’ with Intermittent FastingSELENA RD, INSTAGRAM CORNER
• What I Wish More People with Celiac Disease KnewSue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com