A Canadian Celiac Blog

A companion to A Canadian Celiac Podcast – What's Was I Thinking

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  • Ep 301 April 2024 Roundup

    April 3, 2024 /

    It’s the beginning of April, which for me means that I get to chat with my friend Ellen Bayens of theceliacscene.com about interesting articles and studies she has brought to our attention over the past month. I had to record with Ellen prior to end of the March as I was preparing for knee surgery. Ellen kept posting and you can keep up with her work by subscribing to her monthly newsletter through her website.

    Ellen and I both had copies of the recent booklet produced by Celiac Canada with the preliminary results from their recent survey. There is so much information in these numbers and the analysts have only scratched the surface. You can read these initial results or download the booklet at celiac.ca.

    Both Ellen and I felt my recent conversation with Linda Sills regarding retirement and long-term care for her celiac mother was concerning and something we should all be concerned about for our families and ourselves. Ellen mentioned a previous a podcast I recorded with Mike Rose about choosing safe retirement living – you can listen at – https://acanadianceliacpodcast.libsyn.com/ep-168-retirement-living-gluten-free. As well Ellen wrote an article about Mike which you can read here – https://theceliacscene.com/celiac-crusader-tackles-challenges-residential-living/

    Ellen told us about a new online mentoring program for kids and teens that is being started – you can find out more here – Introducing Celiac Chat – An Online Mentorship Program for Kid & Teens  and hopefully I will speak with Avery for a podcast in the near future.

    Villous atrophy is a term that many of us know from our diagnosis, but Ellen was able to show me an article that listed other conditions that may cause villous atrophy – and here I was thinking it was unique to Celiac Disease. Other Conditions that May Cause Villous Atrophy 

    On a social media note Ellen told us of a situation at a local restaurant in Victoria that recently decided to remove a popular gluten free item from their menu. This was of course unfortunate, but the negative comments on social media that ensued were somewhat over-the-top. Ellen and I comment on the issues.

    I mention that I recently attended a virtual class from Cinde, the everydayglutenfreegourmet.ca. I highly recommend these classes as we can all learn to make more gluten free options.

    Sue’s Websites and Social Media –

    Podcast https://acanadianceliacpodcast.libsyn.com

    Podcast Blog – https://www.acanadianceliacblog.com

    Email – acdnceliacpodcast@gmail.com

    Celiac Kid Stuff – https://www.celiackidstuff.com

    Baking Website – https://www.suesglutenfreebaking.com

    Instagram – @suesgfbaking

    YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

    Email – sue@suesglutenfreebaking.com

    Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

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  • Ep 300 More from the State of Celiac

    March 20, 2024 /

    This episode is a follow up to Episode 298 when I attended an event called The State of Celiac Disease in Canada during the last week of February. Celiac Canada held the event to present the preliminary results of the recent national survey.

    During the event, Melissa Secord the Executive Director of Celiac Canada spoke. I had more questions for Melissa, so I invited her on to this episode of the Podcast. Now that the preliminary results of the survey were being evaluated, I wanted to know more about what the results meant to Celiac Canada, and how they were going to use what they were learning to advance their efforts on our behalf.

    Also, at the event in February, a woman by the name of Linda Sills took to the podium to tell her family’s story of dealing with care homes for her elderly mother. Linda gave an emotional talk, and again, there was more I wanted to know. The prospect of choosing a long-term care home for a loved one or yourself, is daunting, but unfortunately, for many of us, it’s a fact of life. I was grateful that Linda trusted me with her moving story and allowed me to dig a bit deeper into how and why. This was a powerful conversation, and one you may want to refer for others to listen to. Thanks Linda, for sharing in such a personal way.

    You can download the survey presentation booklet and view some of the highlights on Celiac Canada’s website at –

    State of Celiac

    Find. Treat. Cure. State of Celiac Disease in Canada Twenty-year follow-up-survey Read Now Why the Survey? Twenty years after the first internationally acclaimed celiac disease (CD) and gluten disorders quality of life survey in Canada, we wanted to know if life was improving. While there’s increasing awareness of celiac disease and more gluten-free (GF) food […]

    You can also watch The State of Celiac Disease in Canada presentation that was live on YouTube at – https://www.youtube.com/watch?v=I__T36eeNd8&ab_channel=CeliacCanada

    Celiac Canada has an extensive library of videos and presentations on YouTube that answer many of the questions you might have about celiac disease and the gluten free diet – and don’t forget to subscribe to the channel while you’re there.

    Celiac Canada

    Celiac Canada (CCA) is the science-based voice for people living gluten free in Canada. We are a registered charity. We provide evidence-based information, offer world-class education and invest in research to help find a cure or treatment for celiac disease and non-celiac gluten sensitivity.

    Sue’s Websites and Social Media –

    Podcast https://acanadianceliacpodcast.libsyn.com

    Podcast Blog – https://www.acanadianceliacblog.com

    Email – acdnceliacpodcast@gmail.com

    Celiac Kid Stuff – https://www.celiackidstuff.com

    Baking Website – https://www.suesglutenfreebaking.com

    Instagram – @suesgfbaking

    YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

    Email – sue@suesglutenfreebaking.com

    Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

    read more
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  • Ep 299 A Child’s Diagnosis

    March 13, 2024 /

    I recently realized that although many of the people I speak with have been involved in the celiac and gluten free community for many years, I wasn’t well acquainted with the families of the newly diagnosed. When I operated my bakery, I was often the first celiac that people met after their diagnosis – it appears doctors were sending them my way. Since closing the bakery, I’ve built on my knowledge, but I must admit, I need a new perspective on what it’s like to raise a celiac child today.

    Ellen Bayens (theceliacscene.com) was kind enough to introduce me to Kelsea. She is a mom of a busy 10-year-old boy and can clearly remember what life was like before, during and after the diagnosis. Our conversation centres around the diagnosis and how the entire family was affected. I hope to have Kelsea on again to explore more aspects of being a parent to a celiac child.  Hopefully, I’ll speak with her son at some point as well.

    Sue’s Websites and Social Media

    Podcast https://glutenfreeweighin.libsyn.com

    Canadian Celiac Podcast Blog – https://www.acanadianceliacblog.com

    Instagram – @glutenfreeweighin

    Email – GlutenFreeWeighIn@gmail.com

    Celiac Kid Stuff – https://www.celiackidstuff.com

    Baking Website – https://www.suesglutenfreebaking.com

    Other Podcast – A Canadian Celiac Podcast – https://acanadianceliacpodcast.libsyn.com

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  • Ep 298 State of Celiac in Canada I

    March 6, 2024 /

    During the last week of February, Celiac Canada held an event called The State of Celiac Disease in Canada, during which the preliminary results of the recent national survey were presented. I was invited to bring my podcast equipment to the event and record conversations with some of those involved. This episode was recorded at the event, so you will notice some distortion and background noise in the audio – there was lots going on.

    I had the pleasure of speaking with James King. James has been a guest on the podcast previously, but this conversation was all about survey results. James is an analyst who is able to make sense of the numbers. He shares some of his insights into survey results with us. I also spoke to Registered Dietician Caleigh McAulay from Celiac Canada about her role in the formulation of the survey and how the results might help her help us.

    You can download the survey presentation booklet and view some of the highlights on Celiac Canada’s website at –

    State of Celiac

    Find. Treat. Cure. State of Celiac Disease in Canada Twenty-year follow-up-survey Read Now Why the Survey? Twenty years after the first internationally acclaimed celiac disease (CD) and gluten disorders quality of life survey in Canada, we wanted to know if life was improving. While there’s increasing awareness of celiac disease and more gluten-free (GF) food […]

    You can also watch The State of Celiac Disease in Canada presentation that was live on YouTube at –

    Celiac Canada has an extensive library of videos and presentations on YouTube that answer many of the questions you might have about celiac disease and the gluten free diet – and don’t forget to subscribe to the channel while you’re there.

    Celiac Canada

    Celiac Canada (CCA) is the science-based voice for people living gluten free in Canada. We are a registered charity. We provide evidence-based information, offer world-class education and invest in research to help find a cure or treatment for celiac disease and non-celiac gluten sensitivity.

    Sue’s Websites and Social Media –

    Podcast https://acanadianceliacpodcast.libsyn.com

    Podcast Blog – https://www.acanadianceliacblog.com

    Email – acdnceliacpodcast@gmail.com

    Celiac Kid Stuff – https://www.celiackidstuff.com

    Baking Website – https://www.suesglutenfreebaking.com

    Instagram – @suesgfbaking

    YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

    Email – sue@suesglutenfreebaking.com

    Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

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  • Ep 297 March 2024 Roundup

    February 28, 2024 /

    It’s time to catch up with Ellen Bayens of theceliacscene.com for the beginning of March 2024. I have the opportunity to review some of the articles Ellen has brought to our attention over the past month and ask questions as well as interject my own thoughts.

    We talk about a line of granola snacks and breakfast s foods that recently had their “gluten free” designation removed because the manufacturer is no longer using gluten free oat products. As consumers we must accept this as a business decision, but the concern of both Ellen and I was the lack of awareness with consumers of this big change in ingredients.

    Ellen brings to our attention a couple of food recalls by Health Canada of foods containing undeclared gluten. You can sign up to receive these alerts and specify which ingredients you are concerned about on the recalls and alert page – https://recalls-rappels.canada.ca/en

    Ellen includes an interesting article about a young professional hockey player and his journey with celiac disease.

    Of a more concerning nature is the article about a very specific form of cancer which is more common in celiacs and is on the rise. We discuss some of the statistics and if you should be concerned yourself.

    CELIAC SCENE NEWS

    • PRANA Organic Withdraws Gluten-Free Certification from 2 Breakfast Product Lines
    • Celiac Hockey Players Makes Reference to Pucks
    • Concerning News for Celiacs – Cases of Digestive Cancer Increasing
    • Indian Heritage Brand ‘Soya Chaap’ Recalled due to Undeclared Gluten
    • Delizia Vegetarian Beef Balls Recalled due to Undeclared Gluten

    PODCAST CORNER

    • New Chapter for Kinnikinnick Foods
    • Fibre Ideas from Everyday Gluten Free Gourmet
    • ‘Eating Windows’ with Intermittent Fasting

    SELENA RD, INSTAGRAM CORNER
    • What I Wish More People with Celiac Disease Knew

    Sue’s Websites and Social Media –

    Podcast https://acanadianceliacpodcast.libsyn.com

    Podcast Blog – https://www.acanadianceliacblog.com

    Email – acdnceliacpodcast@gmail.com

    Celiac Kid Stuff – https://www.celiackidstuff.com

    Baking Website – https://www.suesglutenfreebaking.com

    Instagram – @suesgfbaking

    YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

    Email – sue@suesglutenfreebaking.com

    Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

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  • Ep 249 Kinnikinnick’s Story Continues

    February 14, 2024 /

    On this episode I speak with Diane Bertrand from a company called English Bay. I wasn’t familiar with English Bay, and that’s because they produce foods for other companies. They do, however maintain a gluten free food manufacturing facility and when the owners of Kinnikinnick were looking for a good time to retire, after all the difficulties of running a specialized food business during the pandemic, English Bay seemed like the perfect fit.

    Diane fills us in on the plans for Kinnikinnick going forward, and it’s comforting to know that not only will things ramp up to get more product into stores, but the products themselves will stay the same including the “free from” identification. Diane and the team from Kinnikinnick have lots of work to do, but it’s something they have the resources and excitement for.

    You can find out more on the website – https://www.kinnikinnick.com/

    research in the Store Finder – https://www.kinnikinnick.com/store-finder

    follow the blog at – https://www.kinnikinnick.com/blog

    check out the Frequently Asked Questions – https://www.kinnikinnick.com/faq-s

    follow them on Facebook at – https://www.facebook.com/KinnikinnickGF/ and

    Instagram at –https://www.instagram.com/kinnikinnickgf/

    Sue’s Websites and Social Media –

    Podcast https://acanadianceliacpodcast.libsyn.com

    Podcast Blog – https://www.acanadianceliacblog.com

    Email – acdnceliacpodcast@gmail.com

    Celiac Kid Stuff – https://www.celiackidstuff.com

    Baking Website – https://www.suesglutenfreebaking.com

    Instagram – @suesgfbaking

    YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

    Email – sue@suesglutenfreebaking.com

    Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

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  • Ep 250 How To Get More Fibre with Cinde

    February 7, 2024 /

    On a recent podcast I spoke with Ellen Bayens about the importance of fibre in a gluten free diet. This topic keeps coming up whenever I speak to someone who is knowledgeable about nutrition. The fact is that most people in general, are not getting close to their recommended intake of fibre. When we talk about those on a gluten free diet, it’s very evident that fibre plays a major role in overall gut health and more effort should be made to increase the fibre in our daily diet. This is where my guest comes in – Cinde, The Everyday Gluten Free Gourmet has lots of suggestions and recipes that can enhance your everyday menus to include more fibre. Cinde has set herself and the listeners three challenges to get more fibre, as well she’s given us lots of recipes and suggestions to do just that.

    To find out more you can go to her link for recipes 33 High Fibre Gluten Free Recipes or browse her website everydayglutenfreegourmet.ca.

    Sue’s Websites and Social Media –

    Podcast https://acanadianceliacpodcast.libsyn.com

    Podcast Blog – https://www.acanadianceliacblog.com

    Email – acdnceliacpodcast@gmail.com

    Celiac Kid Stuff – https://www.celiackidstuff.com

    Baking Website – https://www.suesglutenfreebaking.com

    Instagram – @suesgfbaking

    YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

    Email – sue@suesglutenfreebaking.com

    Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

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  • Ep 294 February 2024 Roundup

    January 31, 2024 /

    Its the beginning of February which means I get the chance to speak with my friend Ellen Bayens of theceliacscene.com to discuss some of the articles she has brought to our attention over the past month. This month is focussing on gut health and those confusing supplements we are seeing everywhere that suggest some of our digestive issues can be solved with a pill that will improve our gut microbiome and in turn our gut health. Ellen breaks down all of the hype and wording around the supplements as well as the studies that are often quoted by supplement providers.

    We also talk about the changes that have been made to the upcoming (May 2025) Gluten Free River Cruise that now starts in Amsterdam. You can find out more by contacting Dianna directly at dmcintosh@expediacruises.com. I mention to Ellen some of the things that have been pleasant surprises for me while staying in Phoenix, Arizona, and we also talk about a new resource on Ellen’s re-vamped website.

    Here are links to the articles from theceliacscene.com –

    CELIAC SCENE NEWS

    • Does Science Support the use of Glutamine, L-glutamine, Collagen & Probiotics?
    • Dietary Fibre – What’s it Good For? You can also find a link here to listen to my podcast with Mairlyn Smith Ep 246
    • Pour Through More than 1500 articles on The Celiac Scene!

    PODCAST CORNER

    • Gluten Free Cruise Update
    • Introducing Intermittent Fasting
    • Food Guide for Celiac Children
    • Kitchen Safety in Blended Families
    • The Celiac Scene News Round Up

    Selena, RD Instagram Corner

    • Celiac Dieititian at Your Finger Tips – Tuesday Q & A
    • 5 Signs & Symptoms that Your Gluten-Free Diet Needs Improvement

    Sue’s Websites and Social Media –

    Podcast https://acanadianceliacpodcast.libsyn.com

    Podcast Blog – https://www.acanadianceliacblog.com

    Email – acdnceliacpodcast@gmail.com

    Celiac Kid Stuff – https://www.celiackidstuff.com

    Baking Website – https://www.suesglutenfreebaking.com

    Instagram – @suesgfbaking

    YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

    Email – sue@suesglutenfreebaking.com

    Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

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  • Ep 293 Gluten Free Cruise Update

    January 22, 2024 /

    On podcast episode 284 I invited you to find out more about a European River Cruise that was being organized by Expedia Cruises, or more specifically, Dianna McIntosh from Ottawa. There was a very tight timeline to book, which made bringing everything together very difficult. Since that time, Dianna and Expedia Cruises have pivoted to a different provider, a slightly smaller ship, but with even more spaces suitable for the group. The new dates of the cruise are now May 3rd to May 10th, 2025. There are exciting other changes as well.

    You can find out more by contacting Dianna directly at dmcintosh@expediacruises.com.

    Sue’s Websites and Social Media –

    Podcast https://acanadianceliacpodcast.libsyn.com

    Podcast Blog – https://www.acanadianceliacblog.com

    Email – acdnceliacpodcast@gmail.com

    Celiac Kid Stuff – https://www.celiackidstuff.com

    Baking Website – https://www.suesglutenfreebaking.com

    Instagram – @suesgfbaking

    YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

    Email – sue@suesglutenfreebaking.com

    Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

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    0 Comments
  • Ep 292 Food Guide for Celiac Kids with Dr. Mager

    January 17, 2024 /

    On this podcast I speak with Dr. Diana Mager. Dr. Mager has been on the podcast previously while she and her team were working hard to formulate a Food Guide for Celiac Children and was soliciting input from parents across the country. The Food Guide is now available and that gives me a great opportunity to invite Dr. Mager back to ask her some questions on the team’s findings as well as how parents can both get and use the Food Guide and its related resources.

    The Gluten Free Food Guide is freely available for download to anyone who would like to access it via: https://drive.google.com/file/d/1CpMuC2kIU43T3MGAMnnrfsqgACUjOtC_/view

    Dr. Diana Mager will be providing free education about the gluten free food guide in a webinar with Celiac Canada. You can find out more and sign up for the webinar at: https://www.celiac.ca/news-events/events/

    You can stay up to date with the ongoing release and education sessions as well as the current food insecurity survey by following Dr. Mager’s  Instagram (@conquer_celiac), X (@conquerstudies) or visiting the team’s website at https://conquer-studies.weebly.com/. 

    Sue’s Websites and Social Media –

    Podcast https://acanadianceliacpodcast.libsyn.com

    Podcast Blog – https://www.acanadianceliacblog.com

    Email – acdnceliacpodcast@gmail.com

    Celiac Kid Stuff – https://www.celiackidstuff.com

    Baking Website – https://www.suesglutenfreebaking.com

    Instagram – @suesgfbaking

    YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

    Email – sue@suesglutenfreebaking.com

    Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

    read more
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  • Ep 351 Talking to Kids about Celiac Disease with Nicole Byrom RD
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