A Canadian Celiac Blog

I’m ready for my roundup chat with Ellen Bayens of theceliacscene.com. Ellen and I talk about current food recalls, as well, we take a deep dive into a few topics concerning gluten free oats, including oat milk.

Ellen points out a great Instagram post from Selena Devries regarding over the counter cold and flu medications that you might be questioning for gluten.

Together, we wade into the complicated and controversial topic of gluten reduced beer. This is something everyone on a gluten free diet should know about.

Here’s a link to Celiac Canada’s webpage regarding their 50^th Anniversary, and this is where you can find out more about nominating someone who’s made a difference.

50

Join us as we celebrate being 50 years young! We’re celebrating the CCA all year long with special events, education and more! Join us!

Links from The Celiac Scene –

Yes! We Can Make Our Own Oat Milk & Oat Creamer!
Forks Over Knives Guide to Oats: Oat Milk, Oat Flour & Overnight Oats
Let’s not forget about our friends with Dermatitis Herpetiformis
Breaking News! Gluten-Free Oat Milk is Back!
Gluten-Removed Beers Do Not Cut it for Celiacs!
RECALL: MacMillan’s Specialty Foods brand McCain 3/8″ Staycrisp Straight Cut Fries
RECALL: Apetito HFS Brand & Heart to Home Meals Brand Meatballs

SELENA’S CORNER
Over-the-Counter Flu & Cold Meds that are Safe for Celiacs!

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.comOther Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

January was very exciting for me – I visited family in Australia!

I had an amazing time, my hosts were wonderful and worked hard to provide me with the full Australian experience.  As a celiac, I was very interested in the gluten free foods available in Australia – Wow! was I blown away by the multitude of options, the variety and the quality. In this episode of the podcast, Ellen Bayens of theceliacscene.com turns the tables and interviews me about my trip, how I ate and if I brought any goodies home with me.

Ellen has relationship with the company that produces Corn Thins for the worldwide market and they are located in Australia. Ellen was kind enough to set up a conversation for me with her contact at Corn Thins to discuss gluten free food production in Australia. You get to listen as Ellen and I find out some unexpected good news about what it means to call a product gluten free in Australia.

I don’t take many photos of my everyday life, but I do photograph food, and while in Australia I took some pictures that you have to see to understand and believe. Follow along with the podcast and refer to the photos on my blog at acanadianceliacblog.com.

PS – I threw in the photos of feeding kangaroos and cuddling a baby wombat.

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

This podcast is part of the 50^th Anniversary celebrations of the first meeting of the Canadian Celiac Association. I was able to chat with many people at the event, some I’ve known a long time and some, I was just meeting that day. We begin the podcast with a conversation with Julie Greene of the CCA who walks us through the very recent name change for the organization. Here’s the link to the CCA webpage for the 50^th Anniversary.

50

Join us as we celebrate being 50 years young! We’re celebrating the CCA all year long with special events, education and more! Join us!

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

Time to catch up with Ellen Bayens of theceliacscene.com. Ellen and I talk about a study that looks at celiac children with persistent symptoms after one year of being established on the gluten free diet. As well Ellen introduces a study in the form of online surveys to be taken by 8 – 16 year old celiac patients, in an effort to improve recommendations for celiac youth. Oats have been in the news lately and Ellen and I look at a study recognizing that some celiacs are not able to tolerate even pure oats. More investigation needs to be done on the cause of a reaction to pure oats, but this study hopefully is the first step to solving this issue. Ellen was able to bring us the story of a family suffering through the war in Ukraine with a sick child suspected of having celiac disease. The family is now in Boston, with the help of The National Celiac Association in Massachusetts. This prompted Ellen to mention a company she’s worked with called TOTAL PREPARE that makes freeze dried meals which can be used in case of an emergency, when camping, or when you’re struggling otherwise for basic necessities, as are parts of Ukraine currently. Ellen directs us to the company’s gluten free webpage –  https://totalprepare.ca/shop/food/?swoof=1&pa_dietary-needs=gluten-free&really_curr_tax=770-product_cat&utm_source=cs&utm_medium=cs&utm_campaign=celiac_scene&utm_id=csgf

Ellen and I recapped my recent series of podcasts about asymptomatic celiacs, including my opinion on what I learned from the conversations.

Ellen was happy to tell us that the Noodlebox restaurant chain from BC has now opened a location in Ontario, west of Toronto. As well she was able to share some of the lengths that MeeT Vegan & Vegetarian restaurants go to in order to offer gluten free on their menu.

Selena DeVries, RD is offering her course “Gluten Free Eating Out Masterclass” free of charge. Sign up to receive the recording at –

https://event.webinarjam.com/go/replay/15/07304f5cyoa0za2

Why GI Symptoms Persist in Some Children with Celiac Disease
Family Flees Ukraine to Get Medical Care for Celiac Son
New ACG Guidelines Suggest that Oats Can Cause an Immune Response in Some Celiacs
University of Surrey (England) Recruiting 8-16 Year Old with Celiac Disease for Study

Jill’s Asymptomatic Journey with Celiac Disease
Two Families Share Their Difficult Road to Diagnosis
Implications of Being an Asymptomatic Celiac

A Warm Victoria Welcome to MeeT Vegan & Vegetarian Restaurant
Noodlebox Opens 30th Restaurant – Stoney Creek, Ontario

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

During the month of January, I’ve presented stories of individuals who consider themselves asymptomatic with Celiac Disease. I also made a commitment to share my thoughts at the end of this series. You can listen to all of these episodes on most podcast apps, on my blog www.acanadianceliacblog.com or on my podcast website acanadianceliacpodcast.libsyn.com.

Episode 249 Advocating for the Undiagnosed

Episode 251 Asymptomatic Mariya and Sacha

Episode 252 Asymptomatic Kids and Parents

Episode 253 Jill’s Asymptomatic Journey

Also, Episode 241 DH and Gluten Free in a Foreign Land

If you would like to share your comments with me, please email to acdnceliacpodcast@gmail.com.

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

During the month of January, I’m presenting stories of individuals who consider themselves asymptomatic with Celiac Disease. On this episode I speak with Jill, who is one of those rare individuals who is biopsy confirmed with celiac disease but has no digestive issues when eating gluten. Listening to Jill I began to understand the difficulty she encounters when making food and lifestyle choices. Those of us with celiac disease know we must eat a gluten free diet, and if we don’t, or aren’t careful, we will suffer noticeable and often life disrupting discomfort. Jill, on the other hand has no digestive, or other issues if she eats gluten. Some may consider this a best-case scenario, if they slip up, or if they accidentally ingest gluten, they won’t even notice. However, this dream scenario comes with its own negative side. Jill struggles to commit to the diet on a long-term basis, even though she knows she should. Jill enjoys going to restaurants and, like the rest of us find requesting gluten free to be a hassle, but unlike the rest of us, she won’t suffer from being glutened, at least not in the short term.

I try to discuss the issues without making Jill feel guilty for slipping from gluten free, and we come up with some strategies going forward to make the diet something she can make a long-term commitment to.

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

Let’s start the blog with the show notes for this Episode –

During the month of January, I’m presenting stories of individuals who consider themselves asymptomatic with Celiac Disease. On this episode I speak with two Moms. The first family is struggling to arrive at a diagnosis for their child. I speak with the Mom both prior to and after the appointment with a specialist. The goal here is to formulate a plan to move forward while a diagnosis is being arrived at. The second Mom has unconventional symptoms, and also has a son who is, for the most part asymptomatic. I speak with both of them, to understand how they cope gluten free day to day.

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

Let’s start the blog with the show notes for this Episode –

During the month of January, I’m presenting stories of individuals who consider themselves asymptomatic with Celiac Disease. On this episode I speak with Mariya and Sacha. We chat about their stories, how they cope day to day and some of the unique issues around having celiac disease without the common severe digestive symptoms. My guests this month represent a broad range of symptoms, most not falling under digestive. I must admit to sometimes wishing I didn’t suffer the digestive effects of eating gluten, but as you’ll hear from my guests this month, being asymptomatic comes with other challenges.

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

Let’s start the blog with the show notes for this Episode –

It feels like a bit of a milestone Episode 250, and it’s most fitting that I’m speaking with Ellen Bayens of www.theceliacscene.com about news and our views that have come up during the past month, getting us all ready to take on 2023.

Ellen and I chat about resistant starches and I learn that my love of leftovers is actually a good thing.  We also look into the CCA Position Statement on Corn products and how it should help us in making safe food choices.

We also talk about some of my recent podcasts including a bonus episode on the Gluten Free Weigh In Podcast where each of my co-hosts gives their take on New Year’s Resolutions. Sidenote – Aaron has a very educated view on behaviour changes that goes way beyond a once-a-year decision.  My podcasts for January will focus on people who consider themselves asymptomatic, or at least differently symptomatic.  I’ll be travelling in January, so hopefully this series of podcasts will come out weekly, but at this point my schedule is somewhat unknown, but I will give it my best attempt.

Here is the list of topics from Ellen –

• What are Resistant Starches and Are You Eating Enough of Them?

• Heads Up Celiacs: CCA Position Statement on Corn Products
• https://www.celiac.ca/wp-content/uploads/2022/12/Corn-Statement-Dec-5-2022-clean.pdf
• Coping Without a Diagnosis
• How to Check Out All-Inclusive Resorts
• What’s harder? Adopting the Gluten-Free Diet or Losing 100 pounds?
• Gluten-Free Crispy Chicken at Big Wheel Burger 
• M&M options & how Rewards Card works

You may also want to check out these links we mentioned during the podcast –

Pilling Foods – https://www.pillingfoods.com/

El Faro Restaurant – https://theceliacscene.com/places/canada/british-columbia/parksville-1/featured-restaurant/el-faro-fusion/

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

Let’s start the blog with the show notes for this Episode –

I was fortunate to talk with many different people who consider themselves asymptomatic with celiac disease for a series of podcasts, uncoming in January. On this podcast, Peggy and her son are not asymptomatic, quite the opposite, their symptoms are severe, but they lack a diagnosis. I’ve run across many families in this situation and it’s difficult to give advice, because knowing what I know about diagnosing and living with celiac disease, I’m not sure what path I would take. Often these situations involve young children, who, for a variety of reasons have not had a proper diagnosis, but decisions must be made to keep they safe and healthy. What I’ve learned from speaking with so many about their diagnosis stories is that very few are straight forward and most have repercussions deep into the family dynamic. If you would like more information on many of the aspects of celiac disease that I speak to Peggy about, spend some time on the website of the Canadian Celiac Association www.celiac.ca. I encourage you to print off whatever resources might help you to speak to your doctor, family members, school or friends about what you need to be healthy.

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com