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Ep 247 December 2022 Roundup
Let’s start the blog with the show notes for this Episode –
It’s the beginning of the month and I get to chat with Ellen Bayens of https://theceliacscene.com/ about the articles she has brought to our attention over the past month. We discuss a study of the issues involved in screening for other autoimmune disorders when patients have Celiac Disease, and screening for Celiac Disease in patients with other autoimmune conditions. We also discuss Refractory Celiac Disease which is CD that doesn’t resolve properly on a gluten free diet. The gluten free diet is difficult to learn and there is a new teaching technique to empower celiacs to use new tools to help them recover.
Ellen and I have a lively discussion about some recent podcasts I’ve done including Episode 246 which is a discussion with larger than life personality Mairlyn Smith about fibre in a gluten free diet, as well as a refreshing (and comical) look at how fibre helps the body.
Ellen has had a relationship with Stella’s Perogies which are now available in Eastern Canada at Sobeys and Walmart. Perogies are popular with many people during the holiday season. I also mentioned a great memory of making perogies at my bakery with members of our local celiac chapter a number of years ago. You can find the recipe on my website www.suesglutenfreebaking.com , under the recipe tab, show #14 https://www.suesglutenfreebaking.com/pasta-gnocchi-perogies
• Case for Screening for Autoimmune Disorders in Patients With Celiac Disease
• Managing Refractory (Non-Resolving) Celiac Disease
• Teaching Celiacs that they CAN Manage the Gluten-Free Diet is Key to their Recovery
• Asympotomatic Celiacs
• Freshly Milled Gluten-Free Flours from Millstone Organics
• Celiac Scene News Round Up• Losing Too Much, Too Fast Fast
• Obesity & Malnutrition Can Co-Exist
GLUTEN-FREE PRODUCTS & SERVICES
• Stella’s Gluten-Free Perogies Now at Sobey’s in Ontario & Atlantic CanadaSue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
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Ep 246 Mairlyn Smith Talks Fibre and Gluten Free
Let’s start the blog with the show notes for this Episode –
This episode has been a long time in the works, since before I started the podcast. I have the pleasure on this episode to have a conversation with Mairlyn Smith, who is a Canadian personality, she is a comedian, an actress, and a Home Economist. As well Mairlyn is a recurring guest expert on Cityline and Breakfast Television. Her current book is called “Peace, Love & Fibre”. I met Mairlyn in the fall of 2017 and it was her encouragement that made me decide to start this podcast. Mairlyn is known in Canada as the Queen of Fibre and in her own amusing and witty way, she answers all my questions about fibre and the gluten free diet. I am fortunate that through the podcast I have met many inspiring individuals, and it all started with inspiration from Mairlyn. Thanks for that!
You can follow Mairlyn on Instagram and Twitter. You too can enjoy sharing a cup of tea with her most mornings on Instagram @mairlynsmith.
Mairlyn Smith with her book Peace, Love & Fibre Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
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Ep 245 Gluten Free Grains and Millstone Organics
Let’s start the blog with the show notes for this Episode –
This episode begins with a short conversation with Ellen Bayens of theceliacscene.com who gives an introduction for my guest, Laurie Kelly of Millstone Farm on Vancouver Island. Millstone farm has some small animal holdings, but is best known for on-site milling of certified gluten free organic grains. Laurie explains how she and her husband made the leap into grain milling, and why gluten free. Also, Laurie has organized the donation of 6,000 gluten free sugar cookies to local charities, including the Mustard Seed Society in Victoria – the catch is, she’s asking members of the community to come to the farm to decorate the cookies. Currently, the November 20th date is fully booked, but they are looking to fill some spots on December 11th. As well, Laurie has a charming story of how her woollen dryer balls caught the eye of some celebrities, and how she was able to mingle with them.
The specialized containers Laurie spoke about were Miron Glass. You can find Millstone Farm & Organics online at https://millstoneorganics.com/ where you can also find links to their Instagram and Facebook pages.
The Beautiful Grain Mill at Millstone Organic Farm Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
My Thoughts –
When Ellen first told me about Laurie and her farm, I was immediately taken with her Cookies for Community donation plan. Certainly the grain milling and her family’s commitment to gluten free are impressive, but for me, there is a special draw for her food donation work.
What Laurie’s efforts highlight to me is that anyone, can craft a way to give back to the food security movement. Some have more resources than others; some have more talents than others; some have more connections than others; but, each of us in our own ways can make a difference. Who would have thought that a farm that mills grains could contribute, but Laurie found a way.
We go through different stages in our lives when “free time” is a more, or less valuable commodity. Many of us are able to contribute gluten free food to a local food bank that has shown a willingness to distribute gluten free foods to those who need them. Others may decide to organize a food drive in their community, family, school or church. The holiday time of year is often when people are most generous, and food banks are happy to be the beneficiaries.
Our small chapter of the CCA here in Kingston, Ontario had normally met during the first half of December for a night out at a safe restaurant. The “price” of admission was a suggested donation of gluten free food, that we would see made its way to the designated food bank. Our members are no different from most other communities in that we are happy, almost giddy, to give, if they know the donation will be going to someone who needs to eat gluten free.
After a recent food drive in our community, I called the food bank to arrange to drop off the carload of food that had been collected. When I arrived, the office manager sought me out, to tell me that just before she was told I was coming, she sent out a tweet asking for gluten free donations, as their supply was getting low. It’s a big equation – clients requiring gluten free food, plus a food bank being able to keep the food separated for those clients, plus a generous community willing to keep re-stocking the gluten free shelves. Giving to a food bank is a great way to help your community, but maybe, just like Laurie, you can come up with another creative way that suits you and your resources.
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Ep 244 CCA Newly Diagnosed Pathway
Let’s start the blog with the show notes for this Episode –
I’m excited to introduce you to a program from the Canadian Celiac Association directed towards those individuals newly diagnosed, their family and caregivers, along with others needing a refresher on the gluten free diet. Nicole Byrom who is a Registered Dietitian working with the CCA, is back on the podcast to tell us about the Newly Diagnosed Pathway. This program is a curated collection of emails that contain different resources and are sent on a periodic basis to educate and inform those who have signed on to the pathway. Nicole mentioned the CCA website, www.celiac.ca; the information email address, info@celiac.ca; along with the helpline phone number (905) 507-6208. When you open the website, you will also be prompted to fill out the State of Celiac Disease in Canada Health Survey, as well you can find the Newly Diagnosed Pathway under the What’s New tab https://www.celiac.ca/newlydiagnosed/.
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
My Thoughts –
It’s a stretch to remember back when I was newly diagnosed. I relied almost exclusively on the information provided by the Canadian Celiac Association. How things have changed. Nowadays, the internet is usually the first place – or specifically “google” where the newly diagnosed go to start their gluten free journey.
Herein lies the flaw. Although the internet has thousands of resources regarding gluten free, most newbies don’t know where to start or what information is reliable. We often see people asking questions on facebook pages and, although there are no dumb questions, these questions form the base of information on the gluten free diet with which learning begins. Clearly there is a disconnect when someone is first diagnosed.
For me, I was told gluten was my problem, but I would be fast-tracked to see a dietitian, so that’s where I would begin my education on gluten free. This was many years ago, and at the appointment, I was given a form to fill out to become a member of the CCA, along with a package of printed material to get me started.
These days, it may take a while to see a dietitian, if at all. Information online may not only be confusing, but can be contradictory. That’s the last thing someone needs when all they want to do is feed themselves (or their child, or their senior relative) safely.
The CCA now has the definitive answer. They’ve thought through what someone needs to know when. During our conversation, Nicole remarked that after the initial emails, you would receive some less important information. She immediately stopped herself to ask me to cut that bit, because all the information was important, and best it be absorbed on a carefully managed schedule.
Well thought out, is a good representation of the program. No program can be all things to all people, and it shouldn’t try to be, but this pathway will stand hand in hand with the newly diagnosed during a most difficult time – Thanks CCA!
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Ep 243 November 2022 Roundup
Let’s start the blog with the show notes for this Episode –
I’m catching up with Ellen Bayens of theceliacscene.com for our monthly roundup of news about celiac disease and the gluten free diet. We cover topics including a study of the risk of triggering CD in children, testing issues with asymptomatic children and the ever-present issues of eating at restaurants. Other links we spoke about –
The Canadian Celiac Association is requesting you take part in a survey – here’s the link – “State of Celiac Disease in Canada”.
What We Wish Restaurants Knew About Serving Gluten Free
Fed up with BC Ferries? Sign the Petition!
Antacids & Antibiotics Increase Risk of Triggering CD in Pre-Disposed Children
Asymptomatic Celiac Kids – Healthy on the Outside – Sick on the InsideWednesday Podcast Man Brain (FABULOUS!!)
Living with Dermatitis Herpetiformis in Algeria
45 Fall Recipes with Everyday Gluten Free Gourmet
Celiac Scene News Round UpGLUTEN-FREE WEIGH IN PODCAST
Non-Scale Victories
Aaron’s Protein Needs More PunchSorting Through Halloween Candy
15 Proteins from Costco
To Oat or Not to Oat?
Book Your Free 15 Minute Phone Call with Selena
Tuesdays Instagram Questions & Answers
Selena’s Symptom Relief Facebook GroupSue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
My Thoughts –
We all benefit from our communities, but it wasn’t until I put the puzzle pieces together by speaking with Derradji and Aaron that I realized many men with celiac disease are not connected to a community of support. It’s easy for me to decide what would benefit me in a support group, but men are a completely different situation.
I never gave the needs of men much thought. It’s not that I didn’t consider them, it’s just that I didn’t realize that they needed different things and resources than women did. I can’t help but think back to when our local support group got together (pre-covid). A couple of the men always attended with their wives, which I thought was just convenient, since I assumed their wives were cooking for them, but there may have been a different dynamic going on that completely escaped me.
I’m searching back into my memory for how the meetings were structured and who did most of the talking. I’m thinking that women took the lead and that’s who I unintentionally was planning the event for. Hmmm, how does one get out of their own head, in order to meet the needs of others?
The curse of knowledge – or going back to a point where you didn’t have the knowledge that you do now – seems to play a part. My learning about celiac and the gluten free diet has not only been from the perspective of a woman, it has been in a community of women, with resources made by women. Clearly, I can’t start again, but I can resolve to stop and think about the community I’m in and pivot to serve that community better.